The why of my life

The other day I was asked, “Why do you choose to volunteer and advocate for others instead of looking for a paid job?” this is very simple yet complex question, at least for me. It made my heart so joyful to answer this question. I wish I could tell you I remember exactly what I said, but now that I’ve had some time to think about it, I want to give the real answer. I didn’t lie to the person who gave me the interview; I just didn’t go into a lot of detail.

The short answer is that I cannot get paid because I would lose my social security, which I need to live In addition, I am the vice chair of the New Jersey Council on Developmental Disabilities, and according to the bylaws, we are not allowed to make a profit from this position. The same goes for my position with SABE, a national advocacy board for individuals with disabilities. My days are long, but I could not be any happier.

People will never understand this, but my disability is not a curse or punishment from God. It is a platform to be the voice for others who have no one to fight for them. The other day, I had to meet with a congressman’s staff. They made me sit at the head of the table because someone else mentioned,’ Kevin had to go first; he is the rock star. I quickly corrected that I was just a nobody. I could not believe what I was doing. That night, I went to bed with tears in my eyes and a full heart.

‭Ephesians 2:8-9 NIV‬ [8] For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God— [9] not by works, so that no one can boast.

A Disability advocates do not get a lot of women. I do not look good on dating apps. The most money I’ve made was a gift card for doing something unofficial for a colleague. My body always hurts at the end of the day it can be lonely because most of the time I’m the only disabled person in the room. Sometimes I do feel the weight of a community on my shoulders. When I have these moments I look to my Bible. I don’t have any weight on me because someone else is holding up for me. I’m just a tool. Do I deserve to be this tool?

No, I don’t. I don’t deserve any blessings. I’m sure I have days when I’ll complain. at the end of each day, I remembered to be grateful because I Was chosen to do the work of my big brother Jesus. That is wonderful! Friends, don’t get so caught up with your narrow view of the world that you forget to look at the big picture. There’s always someone that needs help. Make sure you do your part. Thanks for your time see you next week.