Author: Kevin Núñez

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Hey there, folks! I hope you’re all having a great day. My last few posts have been serious. I wanted to have some fun this week. Today’s blog post is all about challenging some common misconceptions that people have, especially when it comes to disabilities. My goal is to connect the disability community with everyone else out there. I have to admit, it’s a bit nerve-wracking to share this, but when you’re talking about life with a disability, honesty is key. So, let’s dive into three questions that I often get asked.

‭‭Ephesians‬ ‭5:15‭-‬16‬ ‭NIV‬‬  Be very careful, then, how you live—not as unwise but as wise, making the most of every opportunity, because the days are evil. 

How do you pee?

People often assume I use catheters because of the lack of sensation, but having Cerebral Palsy doesn’t necessarily mean I can’t feel. Using catheters can be uncomfortable and increases the risk of infections, so I opt for a urinal bottle. It’s a straightforward process—my caregiver helps me out, and I go about my day.

How do you poop?

This question is a bit tricky because asking for help isn’t easy. When I’m placed on the toilet, I can balance myself, but for the rest, I rely on someone close to me to assist. It’s a vulnerable situation, but knowing they care makes it easier to handle. It’s a bond we share, and it’s part of my daily routine.

Does your junk work?

Yes, it does. I have a fully functional system. This question comes up a lot, and I’m always cautious, especially when someone sits on my lap. It’s not uncommon for them to be surprised, but just like any other couple, we figure out what works for us.

I get that these topics might make you a bit uncomfortable, but that’s okay. The point is to shed light on different experiences and break down misconceptions about disabilities. It’s cool to ask questions, just be mindful of who you’re asking and remember that everyone’s experience is unique.

Disability Limbo Newsletter

I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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“Why do you love writing so much?” Hello, my dear friends! I hope you’re having a fantastic day. I had just finished writing a few pages in my book, Confessions from Disability Limbo.

My twin brother asked the straightforward question mentioned above. Anyway, I’m getting off-topic. My brother asked because who else would willingly spend hours in front of a computer when they weren’t getting paid for it at all?

First, because I can do it all by myself, there are very few things I can do on a daily basis on my own. Once someone gave me my laptop, “The world is mine.” Just like Tony Montana wanted. The only difference is that I have no interest in drugs or world dominance. I love having access to knowledge. When I write an empty page, it doesn’t matter if I can’t clean my backside. The cursor does not pity me, or I think I am mentally delayed. In fact, it’s quite the opposite; the page cannot fill itself. It challenges you; it needs you to leave a piece of yourself behind to be shared with everyone. If what you write does not get shared, it’s only marks on paper. The same goes for art or cooking. Don’t get me wrong, sometimes you have to do stuff for yourself, but for the most part, when you do something with your heart, it’s to be shared.

My son, if your heart is wise, then my heart will be glad indeed; my inmost being will rejoice when your lips speak what is right. Proverbs 23:15‭-‬16 NIV

When I try to walk or stretch my muscles, it hurts. At the very least, it’s uncomfortable. I don’t have to answer, “How did you end up in a wheelchair?” or “Do your legs hurt? I don’t mean to offend anyone by always mentioning God, but I was recently reminded of something: God will never abandon you; he always leaves you with a gift. Making a small difference is his creation.

Even on the worst days, my body does not do what I say, and I have accidents. When my colleagues in the advocacy community think I’m a little overbearing, which honestly, I know I can be, I know I can always sit down to write and release whatever I have inside. I spend the majority of my time riding a 300-pound tank, but when I am in front of my computer, I am completely free! As always, feel free to leave comments. Thank you for letting me be part of your day. I hope to see you soon.

Disability Limbo Newsletter

I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters