Category: Advocacy

  • Life or Hypocrisy

    Life or Hypocrisy

    I know this writing is going to be controversial. All I ask is that you read to the end because an aspect of life is in danger. The assumption is that if you have a disability you automatically align with one political party. The reality is disability affects every aspect of life. I know people with disabilities on all sides of the political spectrum. The art of democracy is compromise and negotiation. Disability is not a partisan issue. I Love working with both Democrats and Republicans. I hope that someone from a red state or a conservative mindset is reading this because I am confused. I will never condemn a woman for choosing to terminate a pregnancy. Who am I to judge? All I know is God gave me a disability and a voice for a reason. My heart breaks every time I hear of a young lady going through with the procedure.

    As an American in 2025, my heart hurts more than ever. If we are pro-life can we put others’ lives in danger? The proposed cuts or caps to Medicaid would directly impact millions of lives. This will not save the taxpayers money, this will not cut wasteful spending. One in three children receives assistance through the Medicaid program. Medicare stops paying for nursing home assistance after 90 days most residents use Medicaid to live. Supporting individuals with disabilities is symbiotic to the growth of the American economy supporting one person with a disability guarantees three to four jobs a day. The Medicaid program is common sense. There is no downside.

    Most individuals and their families do not take advantage of the Medicaid program and its benefits. Give social workers the tools to investigate each case instead of limiting and overworking them. If you want to cut down on waste, go after the providers and corporations. That is where you find fraud and abuse. People will die!

    Isaiah 43:7 NIV “everyone who is called by my name, whom I created for my glory, whom I formed and made.”

    This misguided belief that people with significant needs will not be affected by these potential cuts to Medicaid is a lie. The word fear is a mnemonic device for Fake Evidence Appearing Real. When you call your elected official, ask them if they choose life or if they choose to fear. The Democratic Republic I was raised in was built on prosperity and hope, not fear.

    It’s no secret society fears what is different and difficult. Children in wheelchairs always get lots of attention and blessings from onlookers. Until about the age of 14 then it becomes a stare and pity. Life, no matter what age, is not meant to be convenient. It’s meant to be a journey. At what age does life stop having value? Is it when they cannot apply for a job? Is it when they don’t qualify for income tax? I hope my fellow Americans value more life than money. Otherwise, we are all hypocrites and liars. America, choose between life or hypocrisy?

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  • Blowing off Steam

    Blowing off Steam

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  • American Awareness Preview

    American Awareness Preview

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  • Free Your Mind 2023

    Free Your Mind 2023

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    Have you watched The Matrix? It might seem like just a cool sci-fi movie, but it’s actually way deeper. Beyond the awesome effects and action, it has important ideas about our lives and why we’re here. So, stick with me as I explain. Don’t worry, I won’t give away any surprises from the movie because it’s been around for more than 20 years. If you haven’t seen it by now, you really should.

    Here’s the quick version: The main character, Neo, gets pulled out of a fake world called the Matrix. The twist is that the fake world is the world he’s been living in all his life. He’s told he’s the hero who will save everyone from machines ruling the world. When he is awoken, he doesn’t understand why his eyes hurt. They hurt because he simply hasn’t used them before.

    As someone with a disability, I find this concept awesome. Who wouldn’t want superpowers and to save the world, right? For me, it’s not about flying; it’s about simple things like standing up to pee. Recently, after a tiring day, My body was in a lot of pain, so I took a break to relax. This is rare. I’m always on the go. or at least my mind is. It made me realize that we often don’t really use our brains to their fullest. We only use 10% of our brain’s power. I imagine what we could do if we focused more on our thoughts and feelings.I’m not saying we should ignore our responsibilities and disappear. I’m just saying that sometimes it’s good to take a break.

    “ ‘If you can’?” said Jesus. “Everything is possible for one who believes.”

    Mark 9:23 NIV

    Neo had to believe in himself and make a choice to be a hero. Similarly, I choose to see myself as a person, not just a disability. I believe one day someone will hold my hand without thinking twice. We’re always bombarded with distractions. But we can choose to stop and see beyond what’s obvious. If we want things to change, we need to believe in something different. The door is open, but we have to step through it. Thanks for reading. I love all of you.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • My SABE Second Chance

    My SABE Second Chance

    Have you missed an opportunity, and it became a nagging thought in the back of your mind that you couldn’t shake? Not necessarily regret, simply something you always wondered about. A “what if” moment. Second chances don’t come along that often. especially if you have a disability. Most of the time, we don’t get a first chance. Well, for the first time in my life, I’ve been blessed with this second opportunity. I’m scared to take it, but I know I’m ready for it.

    In case you didn’t read last week’s blog, here is a quick synopsis. In 2018, I attended the national SABE conference. Self Advocates Becoming Empowered is the leading independent advocacy organization run by and for people with disabilities. Every voting member on their board has to have a disability. The representatives divide the country into regions. New Jersey is in Region 7. Along with Pennsylvania, Delaware, Washington, DC, Maryland, Virginia, and West Virginia. At the last conference, I was given the opportunity to represent my region as an alternate. It was kind of last minute. I made a bunch of excuses and decided I wasn’t ready. The next conference was in 2020. That would have been plenty of time to make the right connections.

    Honestly, over the years, I moved on from SABE. I thought it was going to be one of those moments in life. It’s been 3 years, and I haven’t had a conference due to the global situation. I was recruited to serve the region on an income basis. Until the next national conference Why me? I don’t deserve to do anything. So many people have died in the last three years with disabilities. How can I be their voice? I’m a goofball by nature. How can people trust me?

    I’m a firm believer in God’s timing because it’s no coincidence that this opportunity opened back up after my big brother Jesus found me and picked me up. One of the things I have to do is put together a regional conference. A conference made up of every state that I will be representing to educate and collaborate on disability issues. Apart from all the duties of the national organization. I will not lie; I’m more than a little scared. Intimidation is an understatement.

    New Jersey is a small state, and the advocacy community is very small. The organization and the region have been on hiatus. I have to make all new connections and all new contacts. There hasn’t been a regional conference in over 10 years!

    "When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze." Isaiah 43:2 NIV 

    As I’ve said before, I never got to finish college. If, through the glory of God, I get to put together this conference, this will be my graduation. This is the hardest thing I have ever attempted. Zoom and Google Workspace will be tremendous resources. Something that was not discovered years ago. I need to give a huge thank you to the New Jersey Council on Developmental Disabilities for sponsoring me on this journey. By the time this is published, everything should be made official. Someone smarter than me once said, “Life begins outside your comfort zone.” This may not be professional for a blogger, but I’m asking that if you took the time to read this, please pray for me. Not for success. That’s all for God. I’m just looking for wisdom and strength. Never give up, because God won’t give up on you!

    Special Announcement

    I will be taking a small break for the rest of the summer to finish the first draft of my book. Confessions of a Wise Fool. The first draft is always the hardest and I want to get finished before I start working with SABE. I will be back with more blogs after Labor Day. I promise I will still be doing podcasts, so stay tuned to the website! Enjoy the summer.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • Missing out on SABE

    Missing out on SABE

    2020 Reflection

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    Note: The following blog was written in 2020 based on my life experiences. There have been some major life events that have occurred regarding this portion of my advocacy journey. Before I share that, I must share this for context. I hope you enjoy it, and I will provide part two next week.

    The word independence always makes me laugh. Individuals with disabilities are always pushed to be more “independent.” No one is truly independent; we all need a little help. I need more than most; there’s no denying that. I have a very good support system to help me live my day-to-day life. They help me with such things as bathing, dressing, and bathroom necessities. For me, this is not a big deal. It is the only way I know life. If and when I do anything out of the ordinary, that’s when things get a little bit more complicated.

    As I mentioned previously, my life as a disability advocate was very unexpected. I’ve been presented with several different opportunities, and I do my best to capitalize on as many as I can. At this stage in my life, I want to make as much of an impact on the lives of others as possible. I want the work I do to last. I don’t want a fancy award or a statue. Just to see tangible evidence of what I have done. The proof will be seeing the smile on someone’s face. The majority of my work focuses on system change. I don’t work against the system; I work within it to come up with common-sense solutions.

    I was recently given the biggest opportunity of my disability advocacy career, but I don’t know if I can do it because of my disability. Trust me, I know how ironic that sounds. The position is as follows represent seven states on a national level to advocate on their behalf. The organization is called SABE.

    Self-Advocates Becoming Empowered is a national self-advocacy organization. Run by and for people with disabilities, completely independent of any political affiliation. In July 2018. I attended their national conference. I was asked to seek one of the representative positions. I would represent seven states as their lead advocate. I decided then that I would give myself two years to get myself ready and make all the right connections.

    I would only have to travel four times a year to attend the organization’s meetings. The rest I can do remotely thanks to modern technology like Skype and FaceTime. The tricky part is that I have to find one person who is willing to travel with me to help with my personal care four times a year for a 2-year term limit. Not many people would trust a stranger with personal tasks like this. I can’t help but feel guilty. I always feel like I’m bothering someone in some way. There is so much planning and preparation that takes place beforehand. Most get scared off. I do not have a lot of medical needs. Getting me ready for the day and getting me ready to go to sleep are the hardest parts. It’s those little things that people take for granted. That’s one of the main reasons I started this blog. I want to raise awareness about the real lives of people with disabilities.

    I’m not afraid of doing the work. Some people will be hard to deal with. I am sure about that. I still have to write up the proposal to acquire the funds I would need to attempt this venture. I know I must try. The purpose of life is to live life. I know there’s a good chance I will fail. Even if I get everything I need, there’s no guarantee I will win the election for the position. I don’t want to say, “What if?” I want to say, “I did.”

    “In their hearts humans plan their course, but the Lord establishes their steps.” Proverbs 16:9 NIV

    2020. I laughed while typing those numbers. The year the world changed, I spent two years calling people in different states. I would tweet their state organizations to introduce myself. To get ready for the next conference. I found people willing to do my personal care. Like everybody else, they postponed their conference, but not by one year but by two instead. 2022. In today’s world, that’s a lifetime! The disability community has always had a lot of turnover. In two years, every person I talk to will most certainly be gone.

    I never say never to anything, but it’s impossible to know where my life will be by then. Planning from 2018 to 2020 was easy because the world was in its established routine. Now there is no routine. One of the main reasons I wanted the position was to travel across the country four times a year. I’ve only ever gone to Puerto Rico and Disney World. It would have been cool to see new places.

    I am looking for a new opportunity to make a difference for both the world and myself. What opportunities have you not taken advantage of? What things have not worked out for you? I hope this gives you something to think about. Thank you for your time. Another blog will come next Wednesday, as usual. All comments are welcome.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • Restarting Life

    Restarting Life

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    I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalms 139:14 NIV
    
    
    My name is Kevin Nuñez I live with Cerebral Palsy and I cannot do the simplest tasks like tie my shoes. In my senior English class, I had to write a practice essay question for college applications. For some, I’m sure it was just a silly assignment. For me It’s something I never forgot.  “If life had a reset button, would you press it? Like every big decision, they’re pros and cons, so let me give you both of them before I give you my answer.
    
    The negatives: Lack of spontaneity, because I need help from others to do so many daily tasks, I rarely get the feeling. I’m just doing what I want when I want it. Everybody likes the idea of staying in bed an extra 15 minutes. What if you can’t get out of bed until your caregiver shows up for their shift? Feeling like a burden, I have had so many family and friends rearrange their schedules just to include me and sacrifice so much. That it honestly hurts me I just want to run away when in fact that is the last thing I can do. The disability community is the largest under-served population in the USA. That is because they lock us into a system of poverty. It’s simple, the belief is if you work you’re not disabled. That doesn’t consider so many obvious factors most insurance companies Don’t cover wheelchairs or other daily used devices. You want to strengthen to be the best person you can be the fact is you cannot. At 33 It’s no longer amusing to be single. Finding someone to share your life with is simply part of the human experience. Disability and relationships sometimes don’t mix well. Some people  Will never give you a chance to see you as anything more. People have their little check boxes of what they think a partner should be. People were not designed to be put into boxes.
    
    The positives: The kindness and generosity of others, This world can be really dark. I have seen the very best in people. I find the light and the goodness in everyone. No one is all bad, despite what others say. The willingness to not give up so many people who have “everything” Simply choose to do nothing with it. I never look to be an inspiration. However, if I make one person strive to be better through my actions. Then I have helped the world and we should all want to leave the world better than you found it. God’s blessings, I have had so many fortunate and unique adventures that would not have happened if it was not for this disability. From Being on a local radio show as a little kid. To meet with legislators in Washington, DC. I can’t say that me and God have had the best relationship over the years, but I have definitely become a man of faith. I am so grateful for all that I have. I may not have had a lot of relationships to brag about, but I have stayed friends with all them. The simple fact is If you give a person with a disability a chance. You see that the relationship is much deeper and fulfilling because we go past all the typical surface issues that most people cannot get past.  
    
    I am well aware some of you out there would gladly say that you would press the restart button. Regardless of If you had a disability or not. My point is simply this, We have to stop looking at the bad. So we can find the good. By doing this, you do not deny the bad. You are just searching for a unique perspective. Will fully admit, there is no longer a straightforward answer to this question. Some days are tough. That’s just part of life. My answer is still the same as it was all those years ago. I cannot and we’ll never wish to start my life over again.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • Guess Who’s Writing

    Greetings friends, I hope everyone is enjoying the peak fall season. As you know my name is Kevin. I started This blog as a pet project. little by little and with the grace of God. it took off. I wanted to create a space where people with disabilities could write and share their own stories. I am overjoyed to say I now have an official writing team. Please let me introduce you to them. You will notice that my introduction is the longest not because of vanity I just never expected to have anyone else on the website. I will be crafting a new one soon. I will also be adding archives very soon so you can keep up to date with all the writings. God bless you.

    Note: The authors of this page write of their own free will. They receive No monetary compensation. Any opinions expressed are theirs alone.

    David Champignon
    David Champignon

    Mr. David Champignon is a Political Science major from Edinboro University and a graduate of the New Jersey Partners in Policymaking Program. He is a proven leader and staunch advocate for people with disabilities. He currently lives with his wife Jenny in Sayre Pennsylvania. Alongside their dogs and cats, they are living proof that nothing is impossible. His experience blogging and semi-published works make him a perfect candidate to start this project with. 

    Kevin G. Nuñez Head Writer

    Hello and welcome to my blog. I am happy you chose to spend a little bit of your time with me. I’ve been wanting to do this for some time now. Please allow me to introduce myself and what I want to do with this website. A lot of people click the follow button without ever reading the about me page.

    The short answer is I’m a follower of Jesus with a smart-aleck mouth. Who advocates for people and families living with developmental disabilities. In New Jersey. At the moment of writing this, I’m a 34-year-old man living with Cerebral Palsy. It’s a neurological impairment. It affects the connection between my spine and my brain. I use a wheelchair as my main tool for Independence. I still have to depend on others to do basic tasks. like using the bathroom, getting dressed, and transferring in and out of my wheelchair. I was able to attend a public school and College. Only my physical body is affected by this disability, not my mind and heart.

    Let’s begin with my Foundation Jesus and spiritual growth. As a child, my family made sure I always attended church. So, I always believed in god but over the years I struggled and forgot to establish my connection. it’s hard to feel a Divine spark sometimes when society can make you feel less than others. forget about being picked last to play sports I couldn’t even play kickball at recess. my support person would kick the ball for me. girls have run away from me when I tried to ask them out.

    I can never work because if I do I lose my health insurance. I’m glad to say I never felt sorry for myself, it always bothered me that people did so. I never saw myself as any better or worse than anyone else. I never felt “special. ” Then one day in 2020 I found myself downloading a few Bible apps to find something that was missing. That’s when I had my moment, Jesus is like a smartphone that little device we can’t live without. we may have the world at our fingertips but the more you take it off the charger you are dying. at least once or twice a day you have to connect to a higher source to succeed and be everlasting.

    The next part of my life is fun to explain, if you’ve ever seen the movie My Big Fat Greek Wedding that’s my family. only instead of Greek and Windex Puerto Ricans use Vicks Vapor Rub on everything! They are loud and they will always tell you what’s on their mind without the consideration of a filter. Yet, when you need support and need someone to have your back on the darkest day. There’s not a better group of people to have in your corner. The best part is throughout my life we have been able to add members of the family that are not blood who would do the same thing for me.

    The next thing you’re wondering is what I do with my life besides writing these blogs. I am currently the vice chair of the New Jersey Council on Developmental Disabilities. I realized pretty early on in life that I was given in this disability for a reason. I didn’t know what the reason was didn’t know what that reason was. Like I said believed but was not connected. I had to speak out for others who could not speak for themselves. it is a labor of love as I am nothing more than a well-recognized volunteer. I’ve never received any monetary compensation for any of the work I’ve done.

    As for this website, it’s also a labor of love. There are so many misconceptions about the disabled population and the general public. I wanted to bridge the gaps between both worlds by sharing my own experiences. not for vanity but to put some actual positivity in the world. Please feel free to check out the Media Center and other publications on this website to see more work I’ve done to assist those like me.

    The very last thing I want you to know about me is, I’m single ladies! I did not start this website to meet women. I promise you that but at this point, there is no point in not putting myself out there anything could happen. we need to learn to love the person and not what they can offer us like some sort of business arrangement. Yes, I know so many people can not handle a relationship. Due to the nature of their disability but everyone is affected differently by the disability. I will never be on the cover of People’s sexiest man addition. they keep denying my application. (LOL) That’s what I want to change. We need to see the person and not the disability.

    That’s everything friends, if you have any questions please leave them in the comments I will be sure to read all of them. Follow my social media accounts linked to this website I post on them regularly. There will be new posts every Wednesday. Take care of each other and love each other. Have a great and blessed day see you soon.

    Jesse Schwartzman
    Jesse Schwartzman

    Jesse Schwartzman is a disability advocate who has worked in the legal, political, and advocacy fields. He currently works as an outreach and advocacy worker in the disability field. Jesse enjoys helping people and watching sports and movies. He can be reached at jesseschwartzman00@gmail.com

    Nicholas Taubenslag
    Nicholas Taubenslag

    My name is Nicholas Taubenslag. I am a passionate transportation advocate for the Disabled Population. 

    I started my advocacy journey at New Jersey Partner’s In Policy Making where I learned about the history of advocacy. As well as the Disability Rights issues that are facing us presently. For example, Inclusive Education, SSI and Medicaid, Housing, and of course Transportation. 

    I hope to be an asset to this blog and spread my knowledge and life experience to the Disability Community as a whole.

  • Who is Bill Byrne?

    Who is Bill Byrne?

    Quick question to all my readers, Do you know the name of your town mayor?  I’ve lived in the southern part of New Jersey for almost 15 years now and I have no idea who he or she is. I’ve been advocating for my disability community officially since September 2016. I just move on to the next meeting trying to speak for those who cannot speak for themselves. Advocates and disability allies never acknowledge the work we do. We just keep going. There is an international disability community, we all work together to ensure dignity and respect for all regardless of circumstance. The New Jersey Council on Developmental Disabilities (NJCDD) hosted their Community Building Awards An event that is held every few years to honor leaders in the disability population.

    Earlier this week I was left speechless When I met a real-life disability hero, Mr. Bill Byrne. I’m ashamed to say this but I did not grow up training or believing in disability rights. I had a very laid-back approach and let my parents do everything. I didn’t begin to discover my voice until well after I was 18. people like Mr. Byrne were rockstars to me. Everyone knows of Madonna and The Beatles for example. At least in New Jersey and in some national circles, That’s how people describe Bill to me. Here are some of his accolades:

    1. He is friends with Mayor Dorothy of Morristown, NJ. He regularly attends town council meetings.
    2. One of the biggest advocacy organizations used to be known as the Association for Retarded Citizens. Thanks to Mr. Byrne and his colleagues There now known as just The Arc.  
    3. He petitioned the New Jersey government to have the words idiot, insane, and retard removed from the state constitution In the early 2000s. 
    4. He sits on many state, local, and national boards.
    5. A proclamation was passed in his township that declared August 16th as Bill Byrne’s Day.

    Yes, I knew he was receiving the Colleen Frazier award for Self Advocacy from the NJCDD weeks before the event. I am the vice chair of the NJCDD to be transparent. (They’re not sponsoring this article or any work that I post on this website.)  It never occurred to me that I would see him there or sit at the same table as he did. I didn’t realize it until he came to shake my hand. This gentleman who had been raising awareness for disability issues since before I had braces talked to me like  I was the next-door neighbor that he had known for years. So often I get frustrated because my work is not good enough for my perfectionist standards. I know we can all relate to that. We are so focused on tangible results, that we forget about the personal touch. Bill has mastered the personal touch.

    “If I must boast, I will boast of the things that show my weakness. The God and Father of the Lord Jesus, who is to be praised forever, knows that I am not lying.”2 Corinthians 11:30‭-‬31 NIV

    This man who cannot read or write and I’m sure has been put down by others, was so humble and passionate. The first words he spoke when he got up to the podium were to praise and Thank God. As a new Christian, this was the first time I completely understood the mission! All his work meant nothing to him without God. Mr.  Byrne from one disability advocate to another, I thank you for showing me the way. You reminded me of what matters. I pray these words can help someone else. Thank you for reading I will see you next week.

    Sources:

    https://patch.com/new-jersey/morristown/bill-byrne-gets-his-day-in-the-sun

  • Stand and Hug

    Stand and Hug

    “Can you stand up?” That’s something I get asked all the time. So let me answer the question once and for all. The answer is yes and no at the same time. I can bear my weight which creates the illusion that I’m standing but in reality, I can tip over at any moment once someone places me in that standing position. The only way I can stand semi-independently is if I’m holding on to a grab bar or something of that nature. Eventually, my arms will give out and I will be down on the floor until someone comes and picks me up. Let me be clear, when I say I am bearing my own weight in this case it means that I’m doing the work my muscles are sustaining my body mass in this position. Someone still needs to help stabilize me. They should not have to exert any effort at all. The ironic thing is so many people in my life have never seen me do this activity. I only do it when I am about to transfer or in some therapeutic setting. You don’t need to be a physical therapist or a caregiver to get me into this position. It just takes a lot of practice, not skill. The practice is just confidence-building for the other person to realize you are not going to drop me and we really can’t hurt each other. The cool thing about this activity is that it is in the perfect position for me to hug others.

    Finally, brothers and sisters, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable—if anything is excellent or praiseworthy—think about such things. Philippians 4:8 NIV

    Something people don’t realize is because I’m always sitting down I can never give the people I love a gentle embrace. I always have to wait for them to give me one. People know me in one of two ways: a loudmouth obnoxious joker or a constant professional looking for the next opportunity to advocate for others. People are so used to seeing me in a seated position they don’t even think twice about seeing me stand up. The look of shock and horror I receive when I ask people “Can you send me up so I can give you a hug” never gets old. Sometimes I don’t ask because I know they would feel uncomfortable. That’s one of the reasons why I choose to publish this. We live in a world where showing affection is often wrong and frowned upon. So many people require simple human contact. These are the people I’ve always wanted to hug but never have.

    My parents, step-parents, and grandparents have all felt my embrace since they have all transferred me at one point or another. So even though I love you all very much this list is not for you. Thank you for your strong and kind hugs throughout the years. Please remember like always the order doesn’t matter because I love them all in one way or another.

    First, I owe so many hugs to my little cousins. I usually only went to Puerto Rico on vacation and I was so much older than most of them. A lot of them have never seen me without my wheelchair. 

    Next would be without a doubt my colleagues at the New Jersey Council on Developmental Disabilities becoming an advocate changed my life. Some of my colleagues watched me grow up in front of their eyes. I would give every one of them a hug. I know standing up in the middle of a board room it’s probably not the most professional thing but I think if I ever really did this they would make an exception. 

    Both of my siblings are next, I have a twin brother with a similar disability because we’re both sitting down most of the time. I’ve never hugged my brother. I am a notoriously non-crier but  I’m pretty sure this one would make me a little Misty to say the very least. Picture it living with someone for over 30 years and never hugging them.  My little sister who is no longer little has now gone off to college and even though she is “normal” she never actually stood me up. I have no doubt she can do it since she has seen it done a thousand times. It’s just one of those things we never got around to. She has never come into the house or left the house without giving me one. I just think I owe her one now.

    Finally, there’s one person I can’t wait to hug: my future girlfriend. It will be such a wonderful experience holding her and letting her feel safe and warm just before kissing her. As with all my blogs, I hope this changes your perspective on the human experience. I dare all of you to go out this week and give more hugs. Somebody will need it even if they don’t say it. Thank you for reading and see you next Wednesday.