Today, let’s chat about clothes—not from a fashion standpoint, but how they make us feel. Most people feel comfortable working from home in socks, shorts, and T-shirts. I imagine some of you might feel slightly envious when I say that’s my usual work attire. Working from home truly is a blessing, especially for accessibility. It’s a gift I never take for granted.
If I worked a typical job, I’d have to navigate public transportation and spend extra time getting dressed. Yet, here’s my paradox: I love getting dressed up! There’s something about wearing a freshly ironed shirt and a tie that makes me feel invincible like I’m donning a suit of armor. It might sound a bit vain, but looking sharp boosts my confidence. When people think of disabilities, they often picture someone disheveled or in poor health. Dressing up helps counter that stereotype, and people stare a little less.
Ephesians 6:11 NIV [11] Put on the full armor of God, so that you can take your stand against the devil’s schemes.
I’m not ashamed of my disability, but dressing well feels like the closest thing I have to a day off from the assumptions people make. It may sound odd, but it makes perfect sense to me. I love showing people that those with disabilities can lead successful, goal-oriented lives.
There’s an old saying: “Dress to impress.” If you want people to see you differently, sometimes you need to show them a different side of you. Some people need to see the miracle before they believe it. I’m not claiming to be a miracle, but I see the miracle in the people who help me get ready, making sure I look my best. That’s the real magic!
I know only a handful of you read this blog It comes out, but I hope when you get dressed for work tomorrow, you’ll take a little extra time to make yourself look different. Maybe it’s a new bow in your hair or a tie you don’t usually wear. Do the small things that make you feel good. When you look good, you feel good, and when you feel good, you look good. It takes extra effort for me to look good, so when I do, I feel exceptionally great.
As always thanks for reading. I am always looking for new blog ideas, let me know what topics you want me to cover next.
Hey there, folks! I hope you’re all having a great day. My last few posts have been serious. I wanted to have some fun this week. Today’s blog post is all about challenging some common misconceptions that people have, especially when it comes to disabilities. My goal is to connect the disability community with everyone else out there. I have to admit, it’s a bit nerve-wracking to share this, but when you’re talking about life with a disability, honesty is key. So, let’s dive into three questions that I often get asked.
Ephesians 5:15-16 NIV Be very careful, then, how you live—not as unwise but as wise, making the most of every opportunity, because the days are evil.
How do you pee?
People often assume I use catheters because of the lack of sensation, but having Cerebral Palsy doesn’t necessarily mean I can’t feel. Using catheters can be uncomfortable and increases the risk of infections, so I opt for a urinal bottle. It’s a straightforward process—my caregiver helps me out, and I go about my day.
How do you poop?
This question is a bit tricky because asking for help isn’t easy. When I’m placed on the toilet, I can balance myself, but for the rest, I rely on someone close to me to assist. It’s a vulnerable situation, but knowing they care makes it easier to handle. It’s a bond we share, and it’s part of my daily routine.
Does your junk work?
Yes, it does. I have a fully functional system. This question comes up a lot, and I’m always cautious, especially when someone sits on my lap. It’s not uncommon for them to be surprised, but just like any other couple, we figure out what works for us.
I get that these topics might make you a bit uncomfortable, but that’s okay. The point is to shed light on different experiences and break down misconceptions about disabilities. It’s cool to ask questions, just be mindful of who you’re asking and remember that everyone’s experience is unique.
Disability Limbo Newsletter
I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters
“Why do you love writing so much?” Hello, my dear friends! I hope you’re having a fantastic day. I had just finished writing a few pages in my book, Confessions from Disability Limbo.
My twin brother asked the straightforward question mentioned above. Anyway, I’m getting off-topic. My brother asked because who else would willingly spend hours in front of a computer when they weren’t getting paid for it at all?
First, because I can do it all by myself, there are very few things I can do on a daily basis on my own. Once someone gave me my laptop, “The world is mine.” Just like Tony Montana wanted. The only difference is that I have no interest in drugs or world dominance. I love having access to knowledge. When I write an empty page, it doesn’t matter if I can’t clean my backside. The cursor does not pity me, or I think I am mentally delayed. In fact, it’s quite the opposite; the page cannot fill itself. It challenges you; it needs you to leave a piece of yourself behind to be shared with everyone. If what you write does not get shared, it’s only marks on paper. The same goes for art or cooking. Don’t get me wrong, sometimes you have to do stuff for yourself, but for the most part, when you do something with your heart, it’s to be shared.
My son, if your heart is wise, then my heart will be glad indeed; my inmost being will rejoice when your lips speak what is right. Proverbs 23:15-16 NIV
When I try to walk or stretch my muscles, it hurts. At the very least, it’s uncomfortable. I don’t have to answer, “How did you end up in a wheelchair?” or “Do your legs hurt? I don’t mean to offend anyone by always mentioning God, but I was recently reminded of something: God will never abandon you; he always leaves you with a gift. Making a small difference is his creation.
Even on the worst days, my body does not do what I say, and I have accidents. When my colleagues in the advocacy community think I’m a little overbearing, which honestly, I know I can be, I know I can always sit down to write and release whatever I have inside. I spend the majority of my time riding a 300-pound tank, but when I am in front of my computer, I am completely free! As always, feel free to leave comments. Thank you for letting me be part of your day. I hope to see you soon.
Disability Limbo Newsletter
I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters
Many people think that when you get a wheelchair, it’s yours until you outgrow it or someone gives you a new one. Hi there, and thanks for supporting this little blog! I know my recent posts have been pretty serious, so I thought I’d share a fun story today. You see, any wheelchair, no matter what type it is, is actually a machine. And like all machines, they can break down and need fixing.
One rainy Saturday afternoon, my brother and I decided to go to the local mall for some fun. Normally, we can go wherever we want, but because of the rain, we decided to catch a movie and walk around with our caregivers. While I was browsing a store, my wheelchair suddenly stopped. It had been charged up the night before, and there were no problems leading up to this. There I was, stuck next to a display of designer watches that I could never afford—I’ve always wanted a genuine Omega watch with a gold wristband like James Bond! Luckily, all power wheelchairs have a manual function for emergencies. But what puzzled me was that the lever to activate this feature was stuck and wouldn’t move all the way. I was basically stuck in one spot, like a part of the fancy watch display.
In their hearts humans plan their course, but the Lord establishes their steps.
Proverbs 16:9 NIV
With no other choice, we had to call my dad to bring my backup wheelchair, which hadn’t been used for years. We only saved it for emergencies and when we traveled because it could be folded up and taken with us easily. I watched as my dad struggled to move the damaged wheelchair inch by inch until he got it into the car. It turned out that one of the motors had worn out beyond repair. Here’s a fun fact: I learned that day that my power wheelchair has two motors. Insurance wouldn’t cover just one motor replacement, and they told us I could get a new wheelchair in six months. So, I had a decision to make: either replace both motors and lose my chance at the new wheelchair I was entitled to or use a loaner until the time was right.
Something you might not know about a loaner wheelchair is that it’s not like when your car breaks down, and you can choose from different car models to use. Wheelchairs are made to fit each person specifically, so they do their best to find one that fits you from what they have available in the shop that day.
Until they put together my replacement, which I would use for the whole six months, I had to sit in a chair that Hannibal Lecter might have used to scare his victims. You can see it in the picture at the top of this post. For most people, this would be a big inconvenience, but for me, it was just another day with my wheelchair. Once again, I hope this story helps you understand what life is like for people with disabilities and makes you see things from a new perspective. Thanks for reading, and I hope you have a great day ahead!
Disability Limbo Newsletter
I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters
Hey everyone, Now that Labor Day has passed It’s time to get back to blogging. As some of you know, I took the last two months off. To recuperate from surgery and finish my next book. This is my attempt at a life update. First, my hernia surgery was a complete success with no complications. Second, I didn’t finish writing my book, but I think it’s about 75% complete. Stay tuned for further updates. Life is full of opportunities for growth and transformation. Sometimes, all it takes is a willingness to step out of your comfort zone and make small changes.
“As the body without the spirit is dead, so faith without deeds is dead.” James 2:26 NIV
The first change I made was admitting I needed help I know I’m a small-time content creator. That’s perfectly fine with me. I want to do some good and deliver a positive message. There are so many distractions and responsibilities that seek our attention that I am truly amazed when someone takes a few minutes out of their day to read my blogs, listen to one of my podcasts, or buy my books. As you can imagine, this takes a lot of time and energy. This is my part-time job, essentially. My other part-time job is my official advocacy duties, where I serve on various committees on both the state and national level. Despite what you may believe, I do not get paid for any of it. This is a labor of love. Honestly, It can be a little overwhelming for me There is one blog per week and two podcasts a month at a minimum.
I promised myself when I started this journey a few years ago that I would never do it for the money. I hate asking for money. So, after much deliberation and prayer, I decided to employ “the value method.” If you, as a consumer, find value in my work, then please leave me a tip. Now at the top of each blog and podcast You can find a link to my CashApp and PayPal. You can also support the podcast directly. Think of it as a musician on the street If you like my tune, leave some change in the hat. No one is under any obligation, and the content will always be available.
If you follow my social media accounts, I post on them five out of seven days a week. quick little videos of positive reinforcement. Some days, this was more exhausting than producing a podcast. This was the only way I knew To promote my work. So I decided to get off the social media hamster wheel. From August 1st to September 1st, I deleted my social media account. Facebook,Twitter,Instagram, and Snapchat To be transparent, I did keep my LinkedIn, but I hardly ever used it before, and I didn’t really use it in that month anyway.
I have it for my advocacy connections. For the first three or four days, Every time I Went to grab my phone, I felt a little bit weird. We, as a society, have become addicted to social media. After that, I really didn’t think of it at all. I finished a few audiobooks. I wrote three times as much in my book. That was my main goal. It was easier to be more present. I had conversations with people both in person and via text. Without Facebook, you have to find out what the person has been doing. Social media is an important part of our lives. Sometimes you do want to see pictures of your friend’s birthday party or someone’s major life event. However, 90% of it is miscellaneous and forgettable information anyway. The only reason I went back to those accounts was because I hoped one of my videos would make a difference in someone’s day.
The last change I made was more of a personal one. I’m always complaining that I’ll never find someone special in my life. So, I decided to take a chance and do something I promised myself I would never do. Get on dating apps. It’s been about 2 weeks, and I haven’t had any real connections or conversations with anyone, but I figured. Faith without action is dead, so I have to keep putting myself out there. I took the first step and let God do the rest.
Whether it’s taking a break from old habits, trying something new, or seizing new opportunities, each step can lead to personal growth, self-discovery, and positive outcomes. So, don’t be afraid to step out of your comfort zone and embrace change—it might just be the key to a more fulfilling and enriched life. I hope this wasn’t too boring of a first entry after a long summer off, but I wanted to keep you guys informed. Thanks for reading, and I will see you guys next Wednesday. Remember, podcast episodes come out on the first and 15th of every month.
Disability Limbo Newsletter
I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters
People often complain about being stuck in a rut. In this episode, Kevin breaks down three ways to change your life. Remember, small things always add up to the biggest. 1. Try something new that scares you 2. Seek different opportunities. 3. Stop one habit.
Apologies for the DIY lighting and sound editing. I will no longer record in the middle of my kitchen.
In the conclusion to The Dog Days of Life, Kevin breaks down the best ways to find the gift card left for you to make your life count. If you want to learn how not to sleepwalk through life, watch this video or listen to this podcast. Just because your situation is terrible doesn’t mean you must stop living.
The Purposely Broken World, part of the Advocacy Life podcast network, is now offering two episodes a month, one on the first and one on the 15th. In this episode, Kevin recounts his first dance experience as a person with a disability. Please support this podcast. Support the podcast with a monthly donation.
I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalms 139:14 NIV
My name is Kevin Nuñez I live with Cerebral Palsy and I cannot do the simplest tasks like tie my shoes. In my senior English class, I had to write a practice essay question for college applications. For some, I’m sure it was just a silly assignment. For me It’s something I never forgot. “If life had a reset button, would you press it? Like every big decision, they’re pros and cons, so let me give you both of them before I give you my answer.
The negatives: Lack of spontaneity, because I need help from others to do so many daily tasks, I rarely get the feeling. I’m just doing what I want when I want it. Everybody likes the idea of staying in bed an extra 15 minutes. What if you can’t get out of bed until your caregiver shows up for their shift? Feeling like a burden, I have had so many family and friends rearrange their schedules just to include me and sacrifice so much. That it honestly hurts me I just want to run away when in fact that is the last thing I can do. The disability community is the largest under-served population in the USA. That is because they lock us into a system of poverty. It’s simple, the belief is if you work you’re not disabled. That doesn’t consider so many obvious factors most insurance companies Don’t cover wheelchairs or other daily used devices. You want to strengthen to be the best person you can be the fact is you cannot. At 33 It’s no longer amusing to be single. Finding someone to share your life with is simply part of the human experience. Disability and relationships sometimes don’t mix well. Some people Will never give you a chance to see you as anything more. People have their little check boxes of what they think a partner should be. People were not designed to be put into boxes.
The positives: The kindness and generosity of others, This world can be really dark. I have seen the very best in people. I find the light and the goodness in everyone. No one is all bad, despite what others say. The willingness to not give up so many people who have “everything” Simply choose to do nothing with it. I never look to be an inspiration. However, if I make one person strive to be better through my actions. Then I have helped the world and we should all want to leave the world better than you found it. God’s blessings, I have had so many fortunate and unique adventures that would not have happened if it was not for this disability. From Being on a local radio show as a little kid. To meet with legislators in Washington, DC. I can’t say that me and God have had the best relationship over the years, but I have definitely become a man of faith. I am so grateful for all that I have. I may not have had a lot of relationships to brag about, but I have stayed friends with all them. The simple fact is If you give a person with a disability a chance. You see that the relationship is much deeper and fulfilling because we go past all the typical surface issues that most people cannot get past.
I am well aware some of you out there would gladly say that you would press the restart button. Regardless of If you had a disability or not. My point is simply this, We have to stop looking at the bad. So we can find the good. By doing this, you do not deny the bad. You are just searching for a unique perspective. Will fully admit, there is no longer a straightforward answer to this question. Some days are tough. That’s just part of life. My answer is still the same as it was all those years ago. I cannot and we’ll never wish to start my life over again.
Disability Limbo Newsletter
I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters
The Advocacy Life Podcast & Blog 