Tag: autism

  • Disability Language Controversy

    Disability Language Controversy

    Hi friends, welcome back to another community blog post. I apologize that this one is a day late—we were busy celebrating my grandmother’s 84th birthday! She had more energy than I did, so God bless her.

    Today, I want to dive into a topic that is always front and center in our community: disability and language.When we refer to our population, there are generally two primary frameworks: Person-First Language and Disability-First (Identity-First) Language.Person-First Language puts the individual before the condition (e.g., a person with Down syndrome, a person with autism). The core philosophy here is that the individual is a human being first, and their disability is just one aspect of who they are.

    Disability-First (Identity-First) Language places the disability attribute upfront (e.g., an autistic person, a blind person). Proponents often argue that separating the person from the disability can feel like minimizing or denying a fundamental part of their identity, viewing strict person-first language as a form of ableism.

    Where Do I Stand?

    This is a deeply personal and often controversial debate within the disability space. My personal stance is simple: To each their own. If you look at my writing, you will notice that I tend to mix both approaches. Personally, I lean toward person-first language in most aspects of life because I believe Kevin the person is separate from my cerebral palsy. Disability is just a part of who I am. At the same time, I certainly don’t think disability-first language is wrong. But for me personally, identifying solely by my disability first feels a bit uncomfortable. Language is powerful, and it acts as a tool—just like a hammer or a knife, it can be used to build something wonderful or to tear it down. We have to use our words with grace and intentionality.

    If you want to dive deeper into why language matters and how different advocacy groups approach it, check out these trusted resources:

    American Psychological Association (APA) Style Guidelines on Disability – Offers comprehensive guidance on how to write and speak about people with disabilities with neutrality and respect.

    National Center on Disability and Journalism (NCDJ) Style Guide – An incredible tool for journalists, creators, and advocates looking up specific terms, preferred language, and the history behind various disability descriptors.

    Autistic Self Advocacy Network (ASAN) – A great resource for understanding why many self-advocates within the autistic community strongly prefer identity-first language (autistic person).

    The Arc – Preferred Language Guide – One of the oldest and largest community organizations providing clear breakdowns on why language choice matters in public policy and daily life.

    This is a rich, ongoing conversation, and there is no single “right” answer for every individual. What are your thoughts? Do you prefer person-first or disability-first language in your daily life? Let me know in the comments below! Thank you guys, and as always—keep on rolling, keep on living!

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  • RFK Embodies Fear

    RFK Embodies Fear

    “These are kids who will never pay taxes. They’ll never hold a job. They’ll never play baseball. They’ll never write a poem. They’ll never go out on a date. Many of them will never use a toilet unassisted.” Robert F. Kennedy Jr.

    I want to state from the outset: I don’t hate RFK Jr. I respect and love him as a fellow human walking this earth, despite disagreeing on several key issues. Quotes like these are particularly damaging. They embody the ableism and fear that permeate modern American culture.

    The problem with this perspective is that it ignores the fundamental truth that every person with a disability has their own unique journey, their own growth process, their own setbacks, and their own successes.

    So often, people with disabilities are lumped into boxes by a system that refuses to let them out. We are treated as if our lives are a “nice, comfortable jail cell.” We don’t realize that the door is a cell door until it gets slammed in our faces—and by then, it’s too late to get out.

    RFK Jr.’s comments about dating are a prime example of the dehumanization we face. Just because someone may be non-verbal or have different physical needs does not mean they are unable to consent to or enjoy a loving, caring relationship. There are plenty of non-verbal individuals who have had rich, complex romantic lives—some of them having had more sexual encounters than I will ever have!

    Society often measures our value by our productivity—by whether we pay taxes or hold a traditional job. With the new “Home and Community Based services HCBS” cuts coming to the nation in October 2026, many of us will be forced to choose between our health insurance and our ability to work.

    We are forced to disclose our limitations and decide: Do we stay in poverty to keep our benefits, or do we risk it to earn a little bit of money? It is these societal norms that are damaging us, not our wants or our wills. We want to work—we want to work harder than most other Americans. We just need the real opportunities to do so.

    Quotes like these don’t help anyone; they just hurt. If you want to help someone with a disability, don’t look for what you think they “can’t” do. Make them stronger, and they will make you better.

    Don’t be afraid of us. Thrive with us. Push us. Educate us—because we can educate you in the same way. Together, we can learn from each other. That is what a good society does. That is what a good America does.

    Keep on rolling, keep on living.

    The Advocacy Podcast

    Living Beyond Disability Books

    Both books are available exclusively on Amazon.

    Subscribe to Letters From Limb. Newsletter

    This is an exclusive weekly blog on the more fun and creative side of Kevin and his colleagues..

    Where the Ramp Ends

    This is an affiliated podcast that the advocacy life often collaborates with on Check it out today available on all podcast platforms and YouTube..

    Donate to the Advocacy Life Podcast & Blog