Tag: Disability Awareness

  • The Kennedy Family & Disabled Americans

    The Kennedy Family & Disabled Americans

    “A snake pit, where they live in filth and dirt, their clothing in rags, in rooms less comfortable and cheerful than the cages in which we put animals in a zoo.”

    Robert Kennedy Senior made this statement when he was visiting Willowbrook in 1965.

    Willowbrook State School was a state-supported institution for children with intellectual disabilities. Designed to accommodate 4,000 children, by 1965, Willowbrook had a population of 6,000, and a scandal soon erupted over news of the institution’s horrendous conditions and questionable medical practices. It was not closed for another 2 years despite all the outrage. Would you want your child to live in these conditions?

    Disability does not have a political party. A disability does not have a skin color or a specific ethnic race. Disability is America. The only two things certain in this world are death and disability. What makes America great is that we learn from our past so we don’t repeat the mistakes we have made. Disability is not waste, fraud, or abuse. Disability is an example of Hope and prosperity in the American dream. The American Disability community is an example of living prosperity and endurance.

    It’s hard to pinpoint the exact birth of the disability rights movement because disability has been around since the beginning of time, and it will be there until the end of days. America was introduced to the harsh reality of abuse through Robert Kennedy Sr.’s poignant account. Devoid of proper respect and support. Our community faces suffering and death. An autism diagnosis is not evil or a death sentence. A wheelchair is not a confinement, but a tool for opulence.

    This is the current battle that disabled America is facing. We won’t stand for our brothers and sisters being locked up. We aim to help people live fulfilling lives. In the land of the free and the brave, we uphold truth, justice, and the American way as a testament to our identity. Living with a disability presents many challenges. While that’s a fact, things worth pursuing are rarely simple.

    “We choose to do these things not because they’re easy, but because they’re hard.”

    President John F Kennedy made this statement when referring to reaching the Moon in a decade. We have the same privilege to reach for the same stars as anyone else. In America, we do not fear challenges; we embrace them so we can grow. America today is making choices out of fear and misunderstanding. I believe in America, I believe in its people. We still have time to change course. To see value in all of us. Our chosen elected officials need to listen to us.

    '“ Do not seek revenge or bear a grudge against anyone among your people, but love your neighbor as yourself. I am the Lord. 'Leviticus 19:18

    “I don’t think people should take medical advice from me.’

    This statement was made by Robert Kennedy Jr. The current Secretary of Health and Human Services. There will always be misconceptions around disability and our healthcare. However, if we are left out of the conversation, we cannot help the country move forward. The current administration and the disability community cannot be enemies, we must be allies to achieve tomorrow’s victories. Without disability, America will fail because we are America.

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  • Sleepless wiithout Medicaid

    Sleepless wiithout Medicaid

    When I’m writing, a debate is going on at 1:00 in the morning on the current administration’s reconciliation bill. This is America’s future.. I am not a liberal. I love the Democratic process. Where the people we elect, those whom we choose to trust, are supposed to have our best interests in mind. I will not post this until Thursday afternoon. By then, we will know what happened. I want people to understand how those with disabilities will be affected, at least one person.

    The Medicaid program will receive drastic cuts. I’m going to tell you exactly how these cuts would affect my family directly. I acknowledge and understand that I am blessed and fortunate because of my efforts in the advocacy world. I want you to think about others who are not so fortunate. I’ve seen the models that are predicted, at a minimum of 10%. These cuts are like a square peg in a round hole. It doesn’t work! I receive Home and Community-Based Services (HCBS) under a waiver program in New Jersey State Medicaid. This program is legally optional in every state, meaning this will be the first thing to go.

    Matthew 25:40 NIV “The King will reply, ‘Truly I tell you, whatever you did for one of the least of these brothers and sisters of mine, you did for me.’

    • My $60,000 accessible vehicle receives annual servicing to ensure optimal performance. I primarily use this for transportation. For doctor’s appointments and other important engagements. It also helps me avoid becoming a social isolate. The mechanic can fix the motor, but not the lift for the van. This is factual, not fraudulent.
    • I’m currently allowed to go on respites, which gives my father and other family members who assist with my daily care a necessary break so they don’t become burned out or heal if they’re sick. Keeping people in the community is demonstrably cheaper than institutional care. This is how you can prevent waste.
    • Once a week, I receive physical therapy at home to make sure my body does not deteriorate. I could get a prescription from my doctor, it covers approximately 8 weeks of physical therapy. What would happen to your body if you only exercised 8 weeks out of the 52-week year? Not to mention that my father would have to drive me to a facility to do this, putting more mileage on our vehicle.
    • My $50,000 wheelchair is due to be replaced. How much is it going to cost the taxpayers now? This is not abuse, this is necessary accommodation. Should I stay in bed and waste away? If people want those with disabilities dead, why don’t they have the guts to say it?
    • If there’s no oversight, each state will have its own unique Medicaid and Medicare program. I come from a great family, although geographically dispersed. If I have to move, my systemic quality of life would be very different. If I didn’t have a family, I would go into a facility and slowly die. We saw this happen in the mid-80s when Geraldo Rivera first exposed it, and we saw it happen again during the outbreak of the pandemic. It was my understanding did America was supposed to be great for all.
    • With Medicaid, I can entertain job offers and job coaching services. I guess my money is not good enough for the economy.

    My fellow Americans, individuals with disabilities, we are not a terrorist organization. We want to help our nation grow, not hurt it. Is this what you want to hurt your neighbors, your family, and your friends? How will you be able to sleep when all these changes roll out? Have a good night, and may God bless America.

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  • Who am I Podcast Episode

    Who am I Podcast Episode

    The first episode serves as the relaunch and introduction to the podcast. Enjoy and please share.

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  • Wheelchair Questions

    Wheelchair Questions

    Every time someone sees my wheelchair for the first time, I get a lot of questions. “How much did it cost?” “Is it comfortable?” The most common one? “Do you need a license to drive that thing?”

    So here are a few answers: It cost just over $50,000. No, it’s not about comfort—it’s a tool that gives me access to the world. And no, you don’t need a license to operate an electric wheelchair.

    This 300-pound machine is my lifeline. I don’t love it, but I treat it with care—because I have to. It’s been five long years since I even became eligible to apply for a new one.

    People often joke that it must be fun to cruise around all day. What they don’t see is the exhaustion that comes with being in the same position from the moment I wake up until I go to bed—especially on busy days. They smile when they see me recline in my chair, but they don’t realize I do it to prevent pressure sores. If I don’t, I could literally die from one.

    Thanks to God’s grace, I’ve never had one—but I won’t lie, it’s my biggest fear. Even Christopher Reeve, with all his resources, passed away from a bedsore.

    1 Thessalonians 5:18 NIV [18] give thanks in all circumstances; for this is God’s will for you in Christ Jesus.

    There’s a whole world of challenges most people don’t notice: Going around the block just to find one curb cut. Never being able to see over a counter. Being invisible in a crowded room—until someone bumps into me and then apologizes like it’s their worst mistake.

    Please, don’t feel sorry for me. That’s not why I’m writing this. This is about awareness. About understanding.

    Take care of yourself. I hope you never need a wheelchair—but if you do, maybe now you’ll have a better idea of what it means to live in one.

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  • No fear

    No fear

    My fellow individuals and families living with disabilities. No matter what you’re diagnosed with, whether your disability is visible or invisible, the truth is we face difficult times. What can we do about it? Disabled Americans are Americans. We must remind our neighbors that we do exist. That we can and do lead productive lives. Don’t go back in isolation. Don’t go back to being treated like a plant or a house pet. Be the human being you were made to be. Go out to the store and run your errands. Go bowling with your friends. Go out to dinner and order that steak.

    If you are an individual with more significant needs, then encourage your family or caregivers to take you out to those stores so people can see you and see that your life has value. Show them what matters in this world. Money and possessions will only be temporary. We live in a world where people project false faith. Some folks have to see it before they believe it.

    John 20:25 NIV So the other disciples told him, “We have seen the Lord!” But he said to them, “Unless I see the nail marks in his hands and put my finger where the nails were, and put my hand into his side, I will not believe.”

    We were made to be more than “inspirational’’ right now, that might be what this world needs. Fighting is inevitable, but the way we fight is just as important as what we’re fighting for. Engage in battle using your words and spirit. Not with anger and violence, because that is what they want. It is up to us to change the narrative. To lead by example, not from the shadows, as some are doing today. Disability is not a partisan issue. It is a natural part of human existence. When you frame your proposals, your presentations, and your peaceful protests, show them that it makes “common sense” to support individuals and families with disabilities. Show them that by not supporting us, they’re only doing themselves harm. We might have been born disabled, but everyone else is just temporarily abled. People only support disability unless they’re affected by it.

    The time is now to affect their lives with our disabilities. With our perceived weaknesses, help them see our strengths. This cannot wait until tomorrow. This cannot wait until the fear subsides. We must lean on each other so we don’t break. Our journey is long; our struggle and challenges are ever-present. We have the advantage because we were born resilient. We were bred for this battle. They’re not. They protect fear because they are afraid. They bluster because they don’t understand. They boast because they are afraid to lose. Disability is not to be feared. Disability is not a curse or a punishment. It is a platform to show their true values in life. I would like to close with this question: if you were the holy creator, would you use your strongest warriors for the easy battles or save them for the ones you need to win?

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  • More of Me

    More of Me

    Do you remember where you sat on the first day of high school? Most travel with someone with whom you shared a mutual interest. Perhaps you shared physical characteristics. I’m chuckling as I’m writing this. In some ways, part of us have not left that lunch table. There’s an entire field of study dedicated to how humans interact with each other. People claim to be “open-minded,” but I have a little secret for you: we are like-minded, not open-minded. Sure, we can have a conversation around the water cooler. People sympathize with someone for a given time. Honestly, we only go so far outside of our comfort zone.

    Folks today simply do not know how to communicate effectively. One of my favorite parts about going to Puerto Rico every summer as a boy was that I always met new family members. We would know everyone’s life stories within 20 minutes and then start dancing. On my father’s side, my grandfather was one of 10 kids! Nowadays, at all events across our nation, there’s a line of chairs up against the wall with people on their phones. Sometimes texting the person three chairs down! Theoretically, we should know each other better than ever. However, unless we see someone’s birthdays on our Facebook page, they will forget all about them. How sad is that?

    In the year 2025, we all practically have instant communication. Yet there is more division and arguing amongst family and friends than ever. Before people sit down to eat, they intentionally make a list of subjects not to talk about. We have become afraid to speak to each other! Subjects that should be said are not. More importantly, topics that should be said are silenced.

    Be wise in the way you act toward outsiders; make the most of every opportunity. Let your conversation be always full of grace, seasoned with salt, so that you may know how to answer everyone.

    Colossians 4:5‭-‬6

    My freshman year of high school was tough. Every day, I sat alone at a table, eating my cold sandwich and oversized pickle. I was the guest of honor at my very own pity party, and I was upset that my first relationship ended abruptly. My friend group dissolved in the summer between 8th and 9th grade. From the corner where I sat, I could see the entire student body. They all had to walk by me if they wanted a snack. I should have had a conversation every time someone bought a 50-cent cookie or a 75-cent honey bun from the snack bar, but I never noticed that I was seated directly parallel to it. Instead, all I did was stuff my face.

  • For the Love of America

    For the Love of America

    I am a political nerd. I like to watch C-SPAN when I can. This week I knew something special was going to happen. In case you missed it, New Jersey Senator Cory Booker was on the Senate floor for over 25 hours. The man did not stop speaking. He did not sit down unless he was asked a question. He answered the question despite that, he did not sit down! Most Americans feel unheard by their elected officials. Many of the senator’s words were reading letters from his constituents to protect Medicaid. The Medicaid program is not healthcare, it is a lifeline for millions of Americans. Senator Booker, thank you for hearing us.

    I still don’t understand how cutting 880 billion dollars over 10 years is the best path forward for America. Are The prices of eggs going to go down? One in three children who use these benefits are they going to be okay? So many counties nationwide use the Meals on Wheels program to feed older adults. Can local municipalities be ready to pick up the cost? Can they even do so? Yes, the American way of life is expensive, but we cannot save costs at the expense of the most vulnerable. Individuals with disabilities are so strong they need the right support and the opportunities to show it.

    1 Corinthians 3:10 NIV By the grace God has given me, I laid a foundation as a wise builder, and someone else is building on it. But each one should build with care.

    I understand and will fully admit that the government can be way too big. I’m a capitalist through and through. This website is where I sell my books and other works. Americans do need more money in their pocket, but this is not how to do it. When a doctor takes a sample for a biopsy, they use a scalpel, not a hacksaw! If you are going to switch to a new mode of operation, then give people a chance to learn so they can follow it. This week, Secretary Kennedy and President Trump cut a lot of positions from the Department of Human Services. That is a prerogative. What’s wrong is how they do it. Depending on the position, they’re not offered a severance package. You cannot build America without its people.

    Is there a formula that decides what jobs are needed and what jobs are not? Are these decisions being made by artificial intelligence? How do you value an American life? I want the best for vongressional representatives, senators, and president Trump. I want the best for the American people. America will not be the best if we leave others behind. The next building, a strong future, means using all Americans.

    Senator Booker gave us a call to action. A lot of us cannot go, march in Washington, DC. I have another idea post video of your day post them all over social media. Show yourself getting out of bed with twheelsgiver. show yourself with your husband or wife going to the store. If you deliver Meals on Wheels, then take a picture with the person you gave the food to. Let those in power see the smiles on our faces. Help them remember that brief moment also built America. America is more than money. America is neighbors helping each other. America is everyone doing the part. America is alive. Either we all thrive or we will not survive. Thank you for your time.

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  • Comfortably undesirable

    Comfortably undesirable

    I was going to write another blog this week about protecting the rights of individuals with disabilities, but then I realized that this kind of blog also has to be shared because we also have the right as human beings to be loved and to be seen as sexual beings. As long as both individuals can consent and can fully comprehend what a relationship and or sexual encounter entails. Individuals with significant physical disabilities are discouraged from seeking any kind of romantic relationship. In movies and TV, they never show us in a realistic relationship scenario. We are saved for the “inspirational movie.” we are never seen going past a gentle kiss or a cute moment.

    As an individual with a disability, I have grown comfortable with my “different body.” However, in reality, it’s not different at all. I was born with ten fingers and ten toes—two legs and two arms—and most importantly, a heart. Over the years, I’ve learned that my disability can make me feel undesirable to the opposite sex. I can confidently speak in front of legislators and lobbyists, and I can maintain my balance, but the thought of talking to a woman instantly makes me sweat. Why is this?

    I don’t want this to be a “woe is me” narrative; rather, it’s a wake-up call to society regarding the choices they have made. Society often excludes us from love and relationships. We are not just children; we grow up to be adults, too.

    1 Corinthians 13:5-7 NIV It does not dishonor others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs.  Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres.

    Cartoon illustration of blind love or heart holding a cane

    Growing up, I looked up to physical specimens like Hulk Hogan and The Rock. However, none of them looked like me. As an adult, I noticed that the main character in “Fifty Shades of Grey” is a 6-foot-tall, muscular, very masculine man. When will people with disabilities be portrayed beyond their limitations? I believe that, at some point, they will remake “Basic Instinct.” Why not cast someone with a disability in those provocative scenes? In Hollywood, they now employ intimacy coaches to ensure that everyone feels safe during intimate moments.

    We know that the adult film industry is rife with human trafficking and abuse, including victims with disabilities, yet it often goes unnoticed. Our voices matter; our lives matter. I recognize that some men can be terrible. Women are frequently exposed to situations that allow them to be taken advantage of. The good guys tend to hesitate to approach women for fear of being perceived as a threat. By 2025, I’m sure every woman with a cell phone over a certain age will have received inappropriate pictures. As a result, women constantly keep their guard up. If a woman wants to be treated differently by a partner, she should seek a different kind of partner!

    If you search social media, you will likely find relationships where one person is paralyzed. I believe these relationships tend to be more socially acceptable because they were once considered “normal,” and there is a prevailing belief that those with such disabilities can do more for themselves. The concept of a disability hierarchy is another system designed to divide us. A human is a human; we all need love!

    I know I’ve covered a lot in this short blog, but that’s intentional. I want to encourage people to start having difficult conversations and become comfortable with being uncomfortable. By doing so, you will gain a better understanding of what it’s like to live with a disability.

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  • Life or Hypocrisy

    Life or Hypocrisy

    I know this writing is going to be controversial. All I ask is that you read to the end because an aspect of life is in danger. The assumption is that if you have a disability you automatically align with one political party. The reality is disability affects every aspect of life. I know people with disabilities on all sides of the political spectrum. The art of democracy is compromise and negotiation. Disability is not a partisan issue. I Love working with both Democrats and Republicans. I hope that someone from a red state or a conservative mindset is reading this because I am confused. I will never condemn a woman for choosing to terminate a pregnancy. Who am I to judge? All I know is God gave me a disability and a voice for a reason. My heart breaks every time I hear of a young lady going through with the procedure.

    As an American in 2025, my heart hurts more than ever. If we are pro-life can we put others’ lives in danger? The proposed cuts or caps to Medicaid would directly impact millions of lives. This will not save the taxpayers money, this will not cut wasteful spending. One in three children receives assistance through the Medicaid program. Medicare stops paying for nursing home assistance after 90 days most residents use Medicaid to live. Supporting individuals with disabilities is symbiotic to the growth of the American economy supporting one person with a disability guarantees three to four jobs a day. The Medicaid program is common sense. There is no downside.

    Most individuals and their families do not take advantage of the Medicaid program and its benefits. Give social workers the tools to investigate each case instead of limiting and overworking them. If you want to cut down on waste, go after the providers and corporations. That is where you find fraud and abuse. People will die!

    Isaiah 43:7 NIV “everyone who is called by my name, whom I created for my glory, whom I formed and made.”

    This misguided belief that people with significant needs will not be affected by these potential cuts to Medicaid is a lie. The word fear is a mnemonic device for Fake Evidence Appearing Real. When you call your elected official, ask them if they choose life or if they choose to fear. The Democratic Republic I was raised in was built on prosperity and hope, not fear.

    It’s no secret society fears what is different and difficult. Children in wheelchairs always get lots of attention and blessings from onlookers. Until about the age of 14 then it becomes a stare and pity. Life, no matter what age, is not meant to be convenient. It’s meant to be a journey. At what age does life stop having value? Is it when they cannot apply for a job? Is it when they don’t qualify for income tax? I hope my fellow Americans value more life than money. Otherwise, we are all hypocrites and liars. America, choose between life or hypocrisy?

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  • A day in America

    A day in America

    Most of us cannot remember what we had for lunch yesterday because of our busy schedules. Last Tuesday, March 4th, is a day I will never forget. I can recall that happened. In some ways, it doesn’t feel real. It feels like a dream. On this main blog, I usually don’t discuss my anecdotes; I usually save those for my paid newsletter so people can laugh. I save this place for professional topics. For this week, I have to mix them both. I was given the honor and the absolute privilege to attend the State of the Union by President Donald Trump. I was invited as a guest of New Jersey Senator Andy Kim. I spoke on the potential cuts to the Medicaid program and the damage it would cause to the disability community across the nation.

    I’ve found the subjects of civics, government, and politics fascinating. Most children want to be astronauts or play football. Maybe my disability had something to do with it, but neither one of those held any interest for me. I’ve always been a bit of an intellectual, a nerd. I love the art of conversation. I love peaceful discord. I love the Democratic Republic known as the United States of America. I love that I live in a country so great that people from all walks of life have to come together to serve the greater good from time to time. True, you cannot make everyone happy. That’s democracy.

    Walking through the halls of Congress, you can truly see a snapshot of America. You will see every ethnicity, every religion, and every point of view. Not only from the elected officials, but their staff as well. The truth is no country can survive for over 200 years if we are all forced to think and feel the same way. What has kept and will keep the great experiment thriving is that it is built on the backs of its people. We concede something to receive protection and liberty.

    One of my favorite moments of the day was when I sat down for dinner with Senator Andy Kim, a Democrat, and Senator Kevin Connor of North Dakota, a Republican. We engaged in many interesting and thought-provoking conversations, with Ted Cruz sitting just over my left shoulder.

    Luke 14:12-13 NIV Then Jesus said to his host, “When you give a luncheon or dinner, do not invite your friends, your brothers or sisters, your relatives, or your rich neighbors; if you do, they may invite you back and so you will be repaid. But when you give a banquet, invite the poor, the crippled, the lame, the blind, 

    Our discussions centered around disability, a topic that I am passionate about. I love my disability; it took me a long time to understand what it truly offers me. Disability is the great equalizer and represents the intersectionality of humanity. We are all affected by disability in some way. It is not a partisan issue; rather, it is a natural part of the human experience.

    My experiences with disability have broadened my perspective, allowing me to see every side of every possible discussion. It has shaped me into a moderate. I once thought I could only advocate for disability awareness, but my disability has equipped me to engage with various aspects of life. Not every issue is inherently political, but every issue has a connection to disability.

    Let me provide an example. I am an American immigrant, as I was born in Puerto Rico, which is a territory of the United States. Due to my disability, my family moved to New Jersey after I was born. People often worried that since I left Puerto Rico at such a young age, I would not be able to speak Spanish. However, at the age of 37, I gave an interview to a Telemundo affiliate entirely in Spanish, during which I once again discussed the issue of the proposed Medicaid changes.

    I’m not sure if I will ever work for a campaign or serve as a political advisor in Washington, D.C. However, I am grateful to have experienced the American Dream. I believe that my disability has allowed me to be a voice for those who cannot advocate for themselves. Thank you, Senator Andy Kim, and your wonderful staff for being so accommodating. I appreciate your time, and may God bless America!

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