Tag: disability blogger

  • Finding your Belessings

    Finding your Belessings

    By David Champignon

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    Hello, loyal friends and readers. It’s David Champignon. My friend Kevin is hard at work on many upcoming writing projects and has asked me to step in for a few weeks in the interim. With that said, I would like to share something that my wife Jenny and I watched on Sunday. That night we saw the movie The Blessing Bracelet on Hallmark Movies and Mysteries. To my amazement, it’s based on a genuinely beautiful story.

    A woman named Dawn had gone through a divorce and faced mounting doubt and the looming threat of foreclosure at the house where she and her son lived when a friend reminded her of bracelets she used to make. longing for something different but unsure of what exactly to do for those she loved. Like so much that happens in real life, the improvements started off slowly.

    Working at a local restaurant, she began giving the blessing bracelets to customers as a little something extra in addition to her existing great customer service skills. Part of the magic of the blessing bracelets is that they are made with four beads so that people can reflect on the four blessings present in their lives at any time of the day.

    Over time, her community, including her church, rallied around her, and she could barely keep up with demand for the bracelets. Dawn and her loving son made enough money to pay off their debt and cancel the foreclosure. To this day, blessing bracelets are a vibrant business you can order from for yourself or your family.

    What is the lesson here? While not everyone can be an entrepreneur and start a small business to bring joy and blessings to the world, the challenge is to remember the blessings we all have in life. Remember to not take things for granted, no matter how routine our lives get. Finally, remember that the people who matter in life will stick around no matter what. Love those people with all your heart and soul because those people are truly special. Have a great week, and I will see you next week.

    Sources:

    The Blessing Bracelet Movie

    https://www.hallmarkmoviesandmysteries.com/the-blessing-bracelet/about-the-blessing-bracelet

    https://decider.com/2023/04/10/we-found-the-bracelet-from-hallmarks-the-blessing-bracelet/

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • People V. Hate

    People V. Hate

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    Do people ever do little things or say little things that bother you? A pet peeve is defined as just that: ” Something that a particular person finds especially annoying.” I decided to do something a little bit different with this blog post. I want to tell you about one of my “pet peeves” to hopefully create a discussion about how people interact with each other. It bothers me when people say, “I hate people.” I can’t believe people hate every single person in the world that exists on the planet today. So, what exactly do people hate?

    Jesus replied, “ ‘Love the Lord your God with all your heart and with all your soul and with all your mind.’ And the second is like it: ‘Love your neighbor as yourself.’ All the Law and the Prophets hang on these two commandments.” Matthew 22:37‭, ‬39‭-‬40 NIV

    We live in an on-demand society. We have the world at our fingertips, with unlimited amounts of information. You can have your groceries delivered to you within two hours. You can watch any show you want anytime you want. The fact is, people, do not work the same way. It takes time to get to know a person. With the invention of social media, we lead ourselves to believe that we do know someone. Then we are disheartened when it turns out that they were not who they said they were. We no longer use social skills to introduce ourselves, now we use keystrokes. Have you ever been to a party and seen all the kids in a corner together? They communicate with each other without ever saying a word to each other. I find this to be very sad.

    We no longer have patience because everything comes to us right away. People may be rude and inconsiderate, but we no longer try to understand one another. If you think I’m wrong, answer this question Do you know your neighbor? Your best friends used to be your neighbors. I know these are just a few reasons why we all have lost the ability to consistently and effectively create a positive relationship. After reading this, I challenge you to speak to three new people in your world today. Take care, and I will see you next Wednesday as usual.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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    Thank you for your response. ✨

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  • A Message Young Writers

    A Message Young Writers

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    Hello, my good friends, I hope your day is going well. The idea for this blog took me a bit to develop. Frankly, I wasn’t sure if I could even write about this topic. Then I figured it couldn’t do any harm, so here we go. What do you need to be a talented writer? Before I begin, I must issue a small disclaimer. I do not have a degree in journalism, creative writing, or anything like that. I’ve said this many times. The only accreditation I’ve ever had is a basic high school diploma. So remember, while these suggestions are coming with the best of intentions, take them with a grain of salt.

    There are different kinds of gifts, but the same Spirit distributes them. There are different kinds of service, but the same Lord. 1 Corinthians 12:4‭-‬5 NIV
    • If you love writing, then you are a writer! If you write every day, then you are a writer! Don’t let anyone tell you differently.
    • Unlike a movie that a thousand people can see at a time, only one person can read your words at a time. So write to just that person.
    • Writing is a challenge. The page always starts blank. If it was not a God-given talent, everyone could do it.
    • It doesn’t matter if you’re writing about pink elephants or the cheesiest erotica novel, if you spend your time and energy on it, be proud of it.
    • When you’re writing you are sharing a piece of yourself with the world, if you don’t love what you wrote then don’t publish it.
    • Always have a TEAM of editors you trust. If you don’t like objective criticism, then don’t share your work with them.
    • This is not the 1800s reading is no longer the accepted medium to share information. do not be offended when people don’t read your work. Put bluntly, “Writing is not sexy.”
    • Writing is about making a connection, and it does not mean you can connect with every person in the world. With enough connections, you make an impact to change.
    • Despite what any English teacher would have you believe, there are no rules. So write what you know and write what you believe.
    • If you’re not having fun, then you’re doing it wrong.

    I know these suggestions might not make you the next Hemingway or F Scott Fitzgerald, but I hope they make you think about the gift you have and how to use it. It took me a long time to focus and harness my writing style. This is a tiny blog with a tiny following. Share this with anyone who you think might gain something from it. Have fun, and above all NEVER STOP WRITING!

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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    Thank you for your response. ✨

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  • Things to Know about Wheelchairs

    Things to Know about Wheelchairs

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    Greetings friends, I always want to hear from my audience please let me know how you are in the comments. I always get questions about my wheelchair. so, I decided to do something about it. Below are 10 things I want people to know about wheelchairs. I hope you all take away something from this. Enjoy and have a good day.

    "Blessed are the meek, for they will inherit the earth.
    Matthew 5:5 NIV"
    https://matthew.bible/matthew-5-5
    • If you see someone struggling to push their wheelchair. Don’t just go behind them and push. How would you like it if someone grabbed your legs and made you walk?
    • Not all wheelchairs are the same. Most of the time their custom made. Just like every human, every wheelchair is different.
    • If you see someone in a mass-produced wheelchair. Please be patient they are probably uncomfortable. These chairs are not meant for everyday use.
    • If you see someone, open the door for them. Don’t cut in front of them because you’re in a hurry. It’s not polite to assume that someone else will help.
    • The wheelchair may be an extension of their body but unlike yourself, they can’t just clean it when they want to. If you see that it’s a little dirty don’t judge them.
    • Ask how to transfer them if you’re going to do that. Don’t just grab someone’s body. That would be very rude wouldn’t it?
    • Not all wheelchairs have tires filled with air.
    • The vision is at eye level come down to us if you want to talk to us. insurance companies generally deny those wheelchairs that raise up.
    • don’t ask if we have a license to drive the wheelchair you’re not the first person to think of that joke.
    • it is perfectly acceptable to have your children come up to us, just don’t be rude about it.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

    ← Back

    Thank you for your response. ✨

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  • Guess Who’s Writing

    Greetings friends, I hope everyone is enjoying the peak fall season. As you know my name is Kevin. I started This blog as a pet project. little by little and with the grace of God. it took off. I wanted to create a space where people with disabilities could write and share their own stories. I am overjoyed to say I now have an official writing team. Please let me introduce you to them. You will notice that my introduction is the longest not because of vanity I just never expected to have anyone else on the website. I will be crafting a new one soon. I will also be adding archives very soon so you can keep up to date with all the writings. God bless you.

    Note: The authors of this page write of their own free will. They receive No monetary compensation. Any opinions expressed are theirs alone.

    David Champignon
    David Champignon

    Mr. David Champignon is a Political Science major from Edinboro University and a graduate of the New Jersey Partners in Policymaking Program. He is a proven leader and staunch advocate for people with disabilities. He currently lives with his wife Jenny in Sayre Pennsylvania. Alongside their dogs and cats, they are living proof that nothing is impossible. His experience blogging and semi-published works make him a perfect candidate to start this project with. 

    Kevin G. Nuñez Head Writer

    Hello and welcome to my blog. I am happy you chose to spend a little bit of your time with me. I’ve been wanting to do this for some time now. Please allow me to introduce myself and what I want to do with this website. A lot of people click the follow button without ever reading the about me page.

    The short answer is I’m a follower of Jesus with a smart-aleck mouth. Who advocates for people and families living with developmental disabilities. In New Jersey. At the moment of writing this, I’m a 34-year-old man living with Cerebral Palsy. It’s a neurological impairment. It affects the connection between my spine and my brain. I use a wheelchair as my main tool for Independence. I still have to depend on others to do basic tasks. like using the bathroom, getting dressed, and transferring in and out of my wheelchair. I was able to attend a public school and College. Only my physical body is affected by this disability, not my mind and heart.

    Let’s begin with my Foundation Jesus and spiritual growth. As a child, my family made sure I always attended church. So, I always believed in god but over the years I struggled and forgot to establish my connection. it’s hard to feel a Divine spark sometimes when society can make you feel less than others. forget about being picked last to play sports I couldn’t even play kickball at recess. my support person would kick the ball for me. girls have run away from me when I tried to ask them out.

    I can never work because if I do I lose my health insurance. I’m glad to say I never felt sorry for myself, it always bothered me that people did so. I never saw myself as any better or worse than anyone else. I never felt “special. ” Then one day in 2020 I found myself downloading a few Bible apps to find something that was missing. That’s when I had my moment, Jesus is like a smartphone that little device we can’t live without. we may have the world at our fingertips but the more you take it off the charger you are dying. at least once or twice a day you have to connect to a higher source to succeed and be everlasting.

    The next part of my life is fun to explain, if you’ve ever seen the movie My Big Fat Greek Wedding that’s my family. only instead of Greek and Windex Puerto Ricans use Vicks Vapor Rub on everything! They are loud and they will always tell you what’s on their mind without the consideration of a filter. Yet, when you need support and need someone to have your back on the darkest day. There’s not a better group of people to have in your corner. The best part is throughout my life we have been able to add members of the family that are not blood who would do the same thing for me.

    The next thing you’re wondering is what I do with my life besides writing these blogs. I am currently the vice chair of the New Jersey Council on Developmental Disabilities. I realized pretty early on in life that I was given in this disability for a reason. I didn’t know what the reason was didn’t know what that reason was. Like I said believed but was not connected. I had to speak out for others who could not speak for themselves. it is a labor of love as I am nothing more than a well-recognized volunteer. I’ve never received any monetary compensation for any of the work I’ve done.

    As for this website, it’s also a labor of love. There are so many misconceptions about the disabled population and the general public. I wanted to bridge the gaps between both worlds by sharing my own experiences. not for vanity but to put some actual positivity in the world. Please feel free to check out the Media Center and other publications on this website to see more work I’ve done to assist those like me.

    The very last thing I want you to know about me is, I’m single ladies! I did not start this website to meet women. I promise you that but at this point, there is no point in not putting myself out there anything could happen. we need to learn to love the person and not what they can offer us like some sort of business arrangement. Yes, I know so many people can not handle a relationship. Due to the nature of their disability but everyone is affected differently by the disability. I will never be on the cover of People’s sexiest man addition. they keep denying my application. (LOL) That’s what I want to change. We need to see the person and not the disability.

    That’s everything friends, if you have any questions please leave them in the comments I will be sure to read all of them. Follow my social media accounts linked to this website I post on them regularly. There will be new posts every Wednesday. Take care of each other and love each other. Have a great and blessed day see you soon.

    Jesse Schwartzman
    Jesse Schwartzman

    Jesse Schwartzman is a disability advocate who has worked in the legal, political, and advocacy fields. He currently works as an outreach and advocacy worker in the disability field. Jesse enjoys helping people and watching sports and movies. He can be reached at jesseschwartzman00@gmail.com

    Nicholas Taubenslag
    Nicholas Taubenslag

    My name is Nicholas Taubenslag. I am a passionate transportation advocate for the Disabled Population. 

    I started my advocacy journey at New Jersey Partner’s In Policy Making where I learned about the history of advocacy. As well as the Disability Rights issues that are facing us presently. For example, Inclusive Education, SSI and Medicaid, Housing, and of course Transportation. 

    I hope to be an asset to this blog and spread my knowledge and life experience to the Disability Community as a whole.

  • Spiritual Growing Pains

    Spiritual Growing Pains

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    Hello, my wonderful readers I’ve been looking forward to writing this particular post for a little while now. With all the distractions that capture our attention, I feel special anytime someone chooses to spend a few minutes with me reading my writings. That being said,  once again I’m going to talk about disability and my faith journey. I am not a preacher, a pastor, or a faith leader of any kind. This is my testimony as a follower of my big brother, lord, and savior Jesus Christ. At this time I’m not trying to convert anyone or start any controversy. I intend to use my experience of growth to uplift my fellow individuals with disabilities. If you feel uncomfortable you are more than welcome to come back next week. 

    The last few days I felt a little out of sorts. You see, July is disability pride month As you might have seen  I have recently written a few pieces advocating for the changes that need to occur in the disability system to better our lives and they were selected for publication. This made me feel great! I love being the voice for others and I love writing. It’s one of the few activities I can do by myself so I feel free, due to my financial situation and the limitations of my disability, I don’t get out much. It’s always cool to me when I look at the statistics of my website and someone oversees views one of my pieces. 

    Think of it like this, have you ever posted a picture of yourself in front of the mirror and posted it on Facebook? You find yourself going back and looking at how many likes you have. Facebook used to mean a lot to me too. I had over 500 friends at one point and a separate page promoting all my advocacy work. A little over a month ago both of my pages were hacked, I know this is kind of trivial but I had over 10 years of memories that were lost because the creep changed both the email and the password before I noticed. This was my validation of the “normal world.”  It was important to see myself as more than just the “disability hero.” 

    “While still growing and uncut, they wither more quickly than grass. Such is the destiny of all who forget God; so perishes the hope of the godless." Job 8:12‭-‬13 NIV

    What would Jesus do (WWJD)?  This is an acronym every supposed churchgoer knows but so many don’t understand it because they don’t know Jesus they only know of Jesus. Spiritual growth just like physical growth takes time. We don’t go from sucking on our thumbs to driving cars in a few weeks. We learn those skills over a given time.  The more I have come to study and meditate on the word of God the more I realized what was important.  The number of Facebook friends and views on my little website doesn’t matter at all. A few weeks ago I secretly held a social experiment. For one week I did not post anything on Facebook or text anyone. except for my childhood best friend. Who by the way just relaunched his blog. Click Here to read.

    I was hurt. I was always the guy who would send messages to everyone to make sure they were having a good day. Hardly anyone texted me. I thought I was a social butterfly. Turns out I was just easily forgettable. In life quality matters over quantity. That is the opposite of what this world teaches us. So focused on results that are only temporary. This must have been a small example of what Jesus felt like, having so much love for the world knowing and eventually accepting that it would reject him in the long run. Sometimes you only need to restart and be still so God can reveal his actual plan for us. I hope this gives you a lot to think about see you next week. 

  • An Interabled Love Story Part 2

    An Interabled Love Story Part 2

    Welcome back, friends. as promised I am presenting my second interview with Charlie and Margaret. A fabulous interabled couple. Since the last interview in 2020, they’re now engaged and more in love than ever. You can find more about the story on their blog and other social media accounts at Just an Interabled Thing. I gave them each a set of questions their answers have never been altered. They deal with society’s judgments on a daily basis they handle them with grace and kindness. They are an example to everyone that love is real. Regardless of circumstance. I am so thankful they gave me this opportunity to be part of their lives. Hope everyone enjoys it and I will see you next week.

    Questions for Margaret:

    1. Your fiance is not independently wealthy and cannot do basic household chores like taking out the garbage, how does he provide for you?

        “There are different definitions of providing, I would argue that providing emotional support and things like that is harder than providing financially or physically, you know what I mean? Charlie is amazing with emotional support. Our current living situation is living rent-free with my dad, and I do all the cooking and most of the cleaning around the house, we are both so grateful for my dad letting us live in his house.”

    2. How has this relationship changed you as a person?

       “I think that dating Charlie has given me more confidence. When you are in an interabled relationship, you are almost guaranteed to get looked at in public. Being with him has taught me not to care what other people think when I get looked at like I shouldn’t be with him or like I was crazy for being with him.”

    3. Was  Charlie’s family afraid of you dating him? (Follow up) Did you have to earn their trust?

      “ I don’t know the answer to that. I’m sure there were some apprehensions about it at first, and I’d like to think that I’ve earned their trust.”

    4. Being Charlie’s caregiver is easy now because you’re young, What do you plan to do when you both get older and your needs change?

       “I want it to just be me for as long as I can, we have talked about this and when I am no longer able to take care of Charlie on my own, that is when we will look into getting help.”

    5. Are you hesitant to get married due to the disability marriage penalty? The assumption is you would have to take on the financial burden as well as the caregiving one.

     “Absolutely, it amazes me that disabled people still don’t have marriage equality, maybe that stems from the assumption that disabled people are not worthy partners, I don’t know. It scares me as of now because I don’t make that much money and I have student loans to pay off and bills, and we don’t even have our own home yet. Charlie has a bachelor’s degree and tries so hard to get a job and has yet to have success, but hopefully one day a company will see all of his potentials and he will have a job.”

    "Love must be sincere. Hate what is evil; cling to what is good. Be devoted to one another in love. Honor one another above yourselves."Romans 12:9‭-‬10 NIV
    Questions for Charlie:
    1. On the subject of engagement, everyone always focuses on the female. as a disabled male, the expectation is that you will never get married. What did it mean to you to be able to “pop the question?”

    “Honestly, I never thought I would get to that point with someone. I was so used to getting to the CP part of the discussion and people disappearing. I knew very early on that Margaret was the one and knew Disney would be the place. When it came time to pop the question, I thought I would be nervous, but I was not. To me, It was the easiest question I ever asked.”

    1. How can advocates like yourself, break this false expectation of people with disabilities unable to love?

    “Society views disabled people as unworthy of love. To break that ableist view, Margaret and I always post pictures pretty much daily on each of our Instagrams of places we go, etc. We are also not afraid to be all over in public either.”

    1. How has this relationship made you more independent not only physically but as a complete person? (Follow up) If God forbid you guys broke up, Are you afraid you’d have to move back home or into a group home facility?

    “My relationship with Margaret has definitely made me more open and vulnerable. Margaret has always allowed me to be my true self around her and we talk about anything and everything. If we ever broke up, we would no doubt find our way back, there’s no one else for me.”

    1. Was there any aspect of your life as a whole that you will reluctant to let her see or help you with?

    “No that were any aspects of my life that I was reluctant for Margaret to see or help with. I think her experience with people with a disability made everything easier. Margaret was very open about wanting to learn about my care and was helping with getting me dressed, showering, and bathroom stuff from the beginning.”

    1. What do you say to any skeptics that believe that Margaret settled for you and she could do better?

    “To society, our love is as real as it gets. Just like me, Margaret thought she would never find something like this. Margaret never saw my CP or my wheelchair first, she saw me as a person. I know for sure society thinks well he can’t do anything and as a result sees no value. I do plenty for us and Margaret makes me want to be the best version of myself every day.” 

  • An Interabled Love Story Part 1

    An Interabled Love Story Part 1

    Happy Wednesday wonderful friends. I’ve been a blogger for a few years now, but people don’t know it because I relaunched my website in March of 2022. As part of that relaunch, I wanted to focus on sharing the stories of other disabled content creators.  I recently had a chance to catch up with Margaret and Charlie two very good friends of mine. I can’t wait to share the latest interview I had with them but before I do It’s important to reintroduce their story to all my new followers. Below is the first interview I have with them back in the spring of 2020. You can read more about the story on their blog Just interabled Things. Come back next week to learn more about their story.

    “Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It does not dishonor others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres.” 1 Corinthians 13:4‭-‬7 NIV

      Margaret and Charlie are an interabled couple from New York.  For those of you who don’t know “Interabled” is the term used when one of the partners in the relationship has some sort of disability and the other is “normal.” Charlie is diagnosed with Cerebral Palsy like me. In some ways, the disability community can be very small Charlie and I started networking after I discovered his blog with Margaret. Anyone who knows me would tell you that I’m not the kind of guy who falls for sappy love stories. I can’t tell you the last romantic comedy I sat down to watch. They are usually reserved for background noise. The reason I fell in love with their story was simply that it was real and not Hollywood fiction. They provide hope for those of us in the disability community on a very taboo topic, disability, and love. Thank you to Margaret and Charlie for participating in this blog. I hope we can all learn something from it. Love Is Love.

    Please tell all of us how you met.

        – We met on an app called Hinge. I (Margaret) had joined Hinge on Sunday and wasn’t sure if I was going to keep the app for long because I was never a fan of the whole online dating thing. Monday morning I checked my phone at work and saw a message from Charlie and we spent the whole day talking. 

    What first attracted you to each other?

        — Margret: I fell in love with Charlie’s smile. If I am being honest, I still fall for his smile every day. 

        — Charlie: My disability was not the first conversation we had. Margaret wanted to know who I was other than my disability.

    Name one annoying habit about the other that you would not change.

        – Margaret: Charlie likes to sleep impossibly close to me, but I honestly can’t imagine not sleeping, literally holding each other. 

        — Charlie: I was never a person who naps. Margaret loves her naps and I now love them, all thanks to her.

    How do you know it was love and not just some passing fling?

        – Margaret: The second time we FaceTimed, we sat there for almost 6 hours talking. We never ran out of things to talk about and the conversation just felt natural.

        — Charlie: I don’t want to be cliche but I am going to anyway, it was when I woke up the second day after we matched and she was still there.

    What would you tell someone starting an interabled relationship?

        – Margaret: Keep an open mind, do not let their disability scare you off, and don’t be afraid to ask them questions about what they need help with. It is not for everyone, not everyone is meant to date someone with a disability, and society is not ready for it either so you will get looked at, you will get asked if you’re their aid or their sibling even and people will stare, just let them.

        — Charlie: Come in with an open mind, get to know them more than their disability but realize that their disability is still a part of who they are.

    Some people would say that people with a disability should only date other people with disabilities because only they will understand. How do you respond to that?

        — Margaret: I would say that you don’t need to have a disability to completely understand if you are able to put yourself in their shoes. 

        — Charlie: I personally wouldn’t date another person with a disability, we would both need help that we couldn’t give each other.

    There is a misconception that Margaret must have sacrificed everything to be with Charlie. What do you think about that?

        – Margaret: It is definitely a misconception. There really isn’t anything that I have had to sacrifice to be with Charlie. The only thing really is that when we are getting ready for the day or to go somewhere it takes longer because I have to get Charlie ready and get myself ready, but we have gotten it down to a system and it does not even take that long anymore, especially our weekday mornings when I have work.

    Is being Charlie’s main caregiver a burden?

        – Margaret: I would say no. The caregiving aspects of our relationship to me are just more things for us to do together. Being in an interabled relationship brings a whole new level of intimacy to the relationship.

    I apologize for this question, you guys do NOT have to answer it. I’m just asking it because I know someone will ask it. It is Nobody’s Business. I would never ask a stranger but I wanted my blog to be real. Can you have sex and are you both satisfied?

     Both   – Yes and yes, that’s as detailed as that’ll ever get, I get people being curious but our sex life is just for us.

    What do you guys see yourselves in the next 5 years?

    Both — I would say that we want to be living in a different state, be married, and have a few dogs. 

  • Toes in the Sand

    Toes in the Sand

    I want to wish all my readers a wonderful Wednesday. for this week’s post, I decided to share an excerpt from my first publication Confessions From Disability  Limbo  Available exclusively on Amazon Please enjoy see you next Wednesday. I welcome all comments Good and bad.

    There is a question that every person with a disability gets asked a few times in their life. “What would you do if you had an entire day without your disability?” The first thing I would do is get up as early as possible because I know I would need every minute. I would stand up and use the bathroom all by myself. It always felt a little emasculating to pee sitting down to be perfectly honest. Then I would get dressed and find a baseball glove and throw some pitches on the mound. I have no interest in batting. Just let me throw the ball, to get rid of all of my frustrations. Next, I would get in the car and listen to whatever music I wanted, because no one could change stations but me. I would drive to as many friends as I could just to give them hugs. Something that no one realizes is because I’m sitting down, I’ve never actually hugged someone. I always have to wait till they give me one. Make a quick stop at the beach next, just to feel the sand on my toes. 

    The last thing I would do is get all dressed up and go dancing. This is what I want most of all. I would find the prettiest girl on the dance floor and dip her just like they do in old movies. I know what you’re thinking. “You could go dancing now.” I have taken my wheelchair out on the dance floor many times. But I want to go to a club and dance all night. Even though I have tons of wonderful staff and Friends I have nobody to go to stay out all night with and just dance. I would dance until the last minute until I fell because the 24 hours had expired. Then I would get back to my chair with a gigantic smile on my face.

  • Stand and Hug

    Stand and Hug

    “Can you stand up?” That’s something I get asked all the time. So let me answer the question once and for all. The answer is yes and no at the same time. I can bear my weight which creates the illusion that I’m standing but in reality, I can tip over at any moment once someone places me in that standing position. The only way I can stand semi-independently is if I’m holding on to a grab bar or something of that nature. Eventually, my arms will give out and I will be down on the floor until someone comes and picks me up. Let me be clear, when I say I am bearing my own weight in this case it means that I’m doing the work my muscles are sustaining my body mass in this position. Someone still needs to help stabilize me. They should not have to exert any effort at all. The ironic thing is so many people in my life have never seen me do this activity. I only do it when I am about to transfer or in some therapeutic setting. You don’t need to be a physical therapist or a caregiver to get me into this position. It just takes a lot of practice, not skill. The practice is just confidence-building for the other person to realize you are not going to drop me and we really can’t hurt each other. The cool thing about this activity is that it is in the perfect position for me to hug others.

    Finally, brothers and sisters, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable—if anything is excellent or praiseworthy—think about such things. Philippians 4:8 NIV

    Something people don’t realize is because I’m always sitting down I can never give the people I love a gentle embrace. I always have to wait for them to give me one. People know me in one of two ways: a loudmouth obnoxious joker or a constant professional looking for the next opportunity to advocate for others. People are so used to seeing me in a seated position they don’t even think twice about seeing me stand up. The look of shock and horror I receive when I ask people “Can you send me up so I can give you a hug” never gets old. Sometimes I don’t ask because I know they would feel uncomfortable. That’s one of the reasons why I choose to publish this. We live in a world where showing affection is often wrong and frowned upon. So many people require simple human contact. These are the people I’ve always wanted to hug but never have.

    My parents, step-parents, and grandparents have all felt my embrace since they have all transferred me at one point or another. So even though I love you all very much this list is not for you. Thank you for your strong and kind hugs throughout the years. Please remember like always the order doesn’t matter because I love them all in one way or another.

    First, I owe so many hugs to my little cousins. I usually only went to Puerto Rico on vacation and I was so much older than most of them. A lot of them have never seen me without my wheelchair. 

    Next would be without a doubt my colleagues at the New Jersey Council on Developmental Disabilities becoming an advocate changed my life. Some of my colleagues watched me grow up in front of their eyes. I would give every one of them a hug. I know standing up in the middle of a board room it’s probably not the most professional thing but I think if I ever really did this they would make an exception. 

    Both of my siblings are next, I have a twin brother with a similar disability because we’re both sitting down most of the time. I’ve never hugged my brother. I am a notoriously non-crier but  I’m pretty sure this one would make me a little Misty to say the very least. Picture it living with someone for over 30 years and never hugging them.  My little sister who is no longer little has now gone off to college and even though she is “normal” she never actually stood me up. I have no doubt she can do it since she has seen it done a thousand times. It’s just one of those things we never got around to. She has never come into the house or left the house without giving me one. I just think I owe her one now.

    Finally, there’s one person I can’t wait to hug: my future girlfriend. It will be such a wonderful experience holding her and letting her feel safe and warm just before kissing her. As with all my blogs, I hope this changes your perspective on the human experience. I dare all of you to go out this week and give more hugs. Somebody will need it even if they don’t say it. Thank you for reading and see you next Wednesday.