The Advocacy Life Podcast & Blog

Tag: disabled

  • Motivation for Creators

    Motivation for Creators

    Hello readers,

    How is everyone doing? Let me know in the comments! I’ve been blogging and creating positive disability awareness content for a while now. It’s been quite an experience with its ups and downs. I’ve seen a lot of creators share their tips and tricks with their audiences, so I thought I’d do the same. This list won’t include tutorials on how to make money because that’s not my goal. I choose to share my heart and my stories to make a small difference in the world. It’s that simple. What follows is a letter for every content creator out there, but it’s also a reminder for myself on days when I feel frustrated. I can look back at it and remind myself that I can keep going.

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    'Do everything in love. '1 Corinthians 16:14

    To Whom It May Concern,

    First of all, thank you for all that you create on whatever platform you choose. Creating anything is not easy. The page always starts off blank, and you can’t make the best video or podcast if you don’t press record first. You’ll spend hours perfecting and redoing your work, and not everyone is going to follow or subscribe to your content. You can’t make people read every word you write, no matter how much effort you put into it. The market is full of creators constantly battling for attention. You won’t always win, and you won’t always lose. Try not to take it personally. Even the best creators can’t get everyone to follow them, so it’s impossible for you to do the same or better. Haters are real; learn to ignore them. The block button can be your best friend. Help when you can, and step aside if you can’t. You will never make everyone happy all the time. Don’t forget to rest both physically and mentally. Turn off the microphone sometimes. Don’t open up the laptop every day. If a certain platform doesn’t work for you, don’t use it. It’s your creation, so do what works for you. This won’t work if you do it just for money; it has to come from your heart and soul. If you’re not having fun, then you’re not doing it right. Always be yourself; never be fake. People will notice sooner or later. I hope this helps you and reignites the fire inside you. Never let it go out. You might just be the light in someone’s day. Thank you for your time, have a wonderful day, and good luck with your creations. I’m always here to help fellow creators, so feel free to contact me anytime.

  • Investigating wheelchair Rapunzel

    Investigating wheelchair Rapunzel

    This week’s blog is going to be difficult for me to write. When I first started this project, it was meant to uplift my disability community and shed a light in this often dark world. I never want to bash anyone with a disability; our lives can be difficult enough. There is someone out there who is using various social media platforms to perpetuate negative narratives and victimize herself to gain fame and fortune. Alex Dacy, otherwise known as Wheelchair Rapunzel, is a disabled female living with Spinal Muscular Atrophy (SMA). She is not an influencer; she is seeking attention.

    I used to follow her on TikTok and Instagram. I am not an influencer, nor am I judging her based on her disability. She makes me sad and angry because she has so many blessings but does not appreciate them. She should be an example for people with disabilities. Instead, she is an albatross for our way of life. In 1977, Judith Heumann the mother of the disability rights movement, was on the cover of Time magazine. In 2024, our community will see negative stereotypes reinforced because of people like Alex. You don’t have to take my word for it; I have a list of sources below that will let you see for yourself.

    ' “Watch out for false prophets. They come to you in sheep’s clothing, but inwardly they are ferocious wolves. 'Matthew 7:15

    I feel it’s important for people with disabilities to support others. When I used to follow her, it was fun to see someone with a major disability going to the club and living their best life. After a few videos, her content got old fast for me because it reminded me of one of those guests on Jerry Springer. There is a medication called Spinraza that stops or severely slows the progression of her particular disability. The closest thing there is to a miracle drug. As long as it is taken daily. Alex calls it “twerk juice.” It does not take a rocket scientist to see that she is using other drugs or alcohol throughout the day. It is also clear that her content is monetized. Good for her.

    On a recent podcast, she was asked about her adult entertainment site, which I never followed. Again, not a judgment on her. Individuals with disabilities have sex. However, she cannot claim that she had no other choice and she only did it to support her daughter., You cannot have your cake and eat it too. She is blessed with a beautiful daughter who is showcased frequently in her videos. Honestly, I forgot all about her until a few days ago, when I noticed our community was divided on whether to support her or not after she posted several videos victimizing herself for having Child Protective Services (CPS) make several visits to the home.

    CPS harasses parents with disabilities. It is a sad right of passage for a new disabled mom or dad. This is not the case for Wheelchair Rapunzel and her baby’s father. They received home visits because they were high or drunk. The child is being neglected. Don’t take my word for it. Watch the videos for yourself. Her face is always bloodshot, and her partner” is smoking in the videos! One of the sources is an interview with one of her former caregivers. Alexis clearly needs counseling and to seek help. I do wish her the best, but right now she is not someone that should be followed or admired.

    There are so many real disabled content creators and influencers who show their lives in the right way. Squirmy and Grubs a man with the same disability, have a YouTube channel with his wife. I commend them for the courage it took to document the struggle they went through trying to conceive a child. I know so many disabled couples who cry themselves to sleep, knowing they cannot have a child. So many men and women just happen to have some sort of disability that is constantly ignored because people don’t take the time to see their hearts. This world is so backward. All I can say is to investigate what you consume with your time and energy; don’t just watch something because it’s trending. As always, thanks for reading. I will see you next week.

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