Happy New Year! To start the second year of the Perfectly Broken World, Kevin breaks down what it means To have faith followed by action. To start the new year, all actions should lead to both physical and spiritual goals. This is not about inspiration but about motivation Join the conversation today.
Disability Limbo Newsletter
I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters
Greetings,. I hope everyone had a very nice Thanksgiving and is still eating leftovers. If you don’t like them, then hopefully it’s not too much. The important thing is that we don’t waste food.
Is there one moment in your life that just makes you smile? This is something I’ve been wanting to write about for a long time. I know this will not make sense to a lot of people, but I went on a walk with God. This is another blog about my spiritual growth, so if you don’t want to read it, I won’t take offense. However, please scroll down to the bottom for a special announcement.
Due to the global pandemic and my disability, my brother and I did not really leave the house for the majority of 2020 and 2021. I did not see family or friends. My family all got together and decided to splurge on a cruise for the holidays. The Allure of the Seas by Royal Caribbean The idea was to start 2022 off with a bang. Try to put all this pandemic sadness behind us. It’s easy to talk about how great the lobster and beef Wellington were. Being sunburned and peeled like a lizard in the Caribbean is not my greatest takeaway from this vacation. In the middle of this cruise liner, there is an actual park filled with flowers and bird noises. For someone who only made it as far as the backyard and a few doctor’s appointments, this was mind-blowing. You don’t have to take my word for it; click on this link to see it for yourself A central park in the middle of the ocean. Still don’t believe me? Take a good look at the picture In the future image of this post.
This may surprise you, but I don’t spend a lot of time on my own. Some mothers may spend a little extra time in the bathtub with some candles just to relax. I don’t get that because I need help in the shower. I can be left alone for about 4 hours until I have to pee. If I’m honest, that’s the best-case scenario. I have to be doing something and not drinking anything. Having diabetes is a real pain. When I was a kid, I would hold it only because I could. Anyway, back on the ship. For a few minutes, I found myself scrolling through this park. For the first time in what felt like forever, I felt peace and freedom! What would you do in this moment? I rode around and thanked God. People think they have to go on a road trip to discover him. As I’ve said before, God is accessible; he meets you where you are. I know I must have looked completely insane to everyone else who was strolling by. I was in the middle of a conversation.
This ship had multiple decks with very accessible elevators. One of my most irrational fears was riding in an elevator by myself. I could get stuck. What are the odds that it will be empty on a ship full of people? It was! I hit the button and went down to meet my family After my conversation was over, I was so full of God’s grace and love that I didn’t even notice until after. We don’t always recognize the little moments that change our lives. The Holy Trinity is not a group of genies. Our circumstances don’t always change, but our perspectives can. It’s more important to recognize the interior change than anything on the outside. The same God that does big things also does small things. The same God that is in a house of worship is in your heart. Don’t forget to look in there also. Once again, I thank you for reading. Please leave any comments.
A special announcement:
This is my last blog for 2023. Think of it as the season finale of a good TV show, not a goodbye I will be returning in January with more podcasts and blogs around January 15, 2024. If you like my content, click on the links to support me. I hope you have a blessed holiday season and see you all next year!
Disability Limbo Newsletter
I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters
What do you do when you’re alone? When do you feel free? When do you feel peaceful? These are the questions Kevin tries to answer in his final podcast for 2023. This is a love letter to his supporters. This is an inward perspective about the restrictions of his personal disability. If this doesn’t change your perspective on disability, then honestly, nothing will. More information about the podcast and blog is below. All comments are welcome.
Imagine someone proposing to install cameras in your home without your consent. You’d likely object strongly, and rightly so. Now, consider a piece of legislation, S1897/A2483, known as Billy Cray’s Law. The New Jersey legislature is aiming to introduce monitoring devices in group homes and community-based settings for people with disabilities. As Kevin Nuñez, I want to clarify that my opinions are my own, shared to shed light on an often overlooked issue.
The origin of this legislation lies in the tragic passing of Billy Cray, who was found dead in a group home closet. Recent articles, such as the one highlighting the push for cameras in group homes, add a layer of complexity to an already contentious debate. Another piece examines the ongoing discourse surrounding whether cameras would genuinely make group homes safer or if they compromise residents’ privacy.
Financially, the burden on providers is immense. The strain on the disability care system has been building for a while and has reached a breaking point, made worse by current issues. Caregivers, the backbone of the system, already face difficulties. Constant scrutiny undermines the trust crucial for effective care.
Proverbs 28:6 NIV Better the poor whose walk is blameless than the rich whose ways are perverse.
Particularly troubling is the provision allowing monitoring devices in bedrooms and at the entrance to bathrooms. If any individual or their family does not wish to be recorded, they must move. This is a forest evacuation. This “choice” is more illusion than empowerment. This bill aims to protect the most vulnerable, but instead, it takes away freedom for all individuals. The disability population is made up of people. Please stop trying to fix the system with a one-size-fits-all solution.
In a time where awareness is crucial, I encourage everyone to conduct their research, form their opinions, and engage in discussions about the potential repercussions of Billy Cray’s Law. It’s not just a matter of legislation; it’s about the well-being and rights of an often marginalized community. The recent push for cameras in group homes, coupled with the ongoing privacy debate as explored in the linked articles, underscores the need for a nuanced approach that balances security with respect for personal privacy.
I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters
Hey there, folks! I hope you’re all having a great day. My last few posts have been serious. I wanted to have some fun this week. Today’s blog post is all about challenging some common misconceptions that people have, especially when it comes to disabilities. My goal is to connect the disability community with everyone else out there. I have to admit, it’s a bit nerve-wracking to share this, but when you’re talking about life with a disability, honesty is key. So, let’s dive into three questions that I often get asked.
Ephesians 5:15-16 NIV Be very careful, then, how you live—not as unwise but as wise, making the most of every opportunity, because the days are evil.
How do you pee?
People often assume I use catheters because of the lack of sensation, but having Cerebral Palsy doesn’t necessarily mean I can’t feel. Using catheters can be uncomfortable and increases the risk of infections, so I opt for a urinal bottle. It’s a straightforward process—my caregiver helps me out, and I go about my day.
How do you poop?
This question is a bit tricky because asking for help isn’t easy. When I’m placed on the toilet, I can balance myself, but for the rest, I rely on someone close to me to assist. It’s a vulnerable situation, but knowing they care makes it easier to handle. It’s a bond we share, and it’s part of my daily routine.
Does your junk work?
Yes, it does. I have a fully functional system. This question comes up a lot, and I’m always cautious, especially when someone sits on my lap. It’s not uncommon for them to be surprised, but just like any other couple, we figure out what works for us.
I get that these topics might make you a bit uncomfortable, but that’s okay. The point is to shed light on different experiences and break down misconceptions about disabilities. It’s cool to ask questions, just be mindful of who you’re asking and remember that everyone’s experience is unique.
Disability Limbo Newsletter
I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters
Enjoy the new podcast episode. the new blog will be available next week
In the second episode of November, Kevin breaks down a very common question around Thanksgiving. Simply, what are you thankful for? Every struggle and hardship we go through teaches us a lesson in gratitude. Thank you all for the support Happy Thanksgiving! links to support or below.
I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters
Hey there! I came across this fascinating article by Javier Robles, a respected figure in the disability community. The opinion piece challenges readers to discover a more realistic definition of disability. Dive into the thought-provoking insights shared by this Rutgers professor. In a world where we often have fixed ideas about disability, this article is like a friendly push, asking us to question what we think we know and see things in a new light.
Robles guides us through the world of disability, helping us understand it better. He asks us to think about how society sees disability and encourages us to understand it in a more genuine way. This article isn’t just about thinking—it’s a call to action. Robles wants us to talk about disability differently to challenge our ideas and make our society more understanding. It’s a chance to open our minds and be a part of a more inclusive world.
Join Javier Robles on this journey to rethink disability. Let’s change how we see things, break old ideas, and embrace a truer understanding of disability. The conversation is starting, and it’s time for us to be a part of it. Have a good day See you guys next week! All comments are welcome.
I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters
After a long break, Miss Betzy Lee is back with a new podcast episode! In this episode, she discusses all the support you can give a family living with a disability. Because disability does not affect just the person but the entire family, this is a very interesting retrospective on a family dynamic that most people don’t think about. This is a podcast everyone needs to listen to or watch. Please share with your friends. If you like this podcast, please support it with a donation. It will go right to her, even though she is affiliated with the Advocacy Life podcast network. All donations made to this episode will go to her.
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Disability Limbo Newsletter
I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters
In the first podcast episode for November 2023, Kevin discusses how God is accessible to all, regardless of ability or disability. He uses personal anecdotes to provide a quick testimony of his love for Jesus Christ. This is a quick pick-me-up, not about conversion. If you want to listen, please do so to the end.
I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters
Greetings readers! The spooky season is officially upon us. Horror movies like Halloween, Scream, and Friday the 13th have been reviewed a thousand times So, I’m not going to do that. It would be completely off-brand for this blog. However, I would like to know what your favorite scary movie is. Please let me know in the comments.
Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.”
Joshua 1:9 NIV
Now, onto a significant milestone for the disability community—cinematic representation. In the Hulu original movie “Run,” Kiera Allen takes center stage. Since 2014, Kiera has used a wheelchair for mobility for undisclosed reasons. She became the first real-life wheelchair user to star in a major thriller in 73 years. The storyline follows a young woman with a disability navigating the complexities of adulthood alongside her mother, her primary caregiver. (Sarah Paulson) While the plot may seem straightforward, the film delves into the thriller/horror genre, bringing with it themes that, despite being familiar, earned it a “Certified Fresh” badge on Rotten Tomatoes in 2020. What sets it apart is the inclusion of disability, adding an extra layer to captivate the audience.
Navigating the world with a disability often means being part of a relatively small community. As someone who has critiqued Hollywood’s portrayal of disability, “Run” pleasantly surprised me. Its a good movie, but it also allowed me to connect with the character’s journey on a personal level. As a person with a physical disability, the burden complex is a real struggle I go through. It was interesting to see this used as a twist. Unlike the usual narrative of feel-good stories associated with disabilities, this film doesn’t aim for Oscars or the title of the scariest movie ever made. Instead, it presents itself as a compelling narrative that invites the audience to identify with its main character in a unique way.
If you haven’t noticed by now, I’m specifically avoiding spoilers. This film has gone under the radar. “Run” is a must-watch. It doesn’t rely on jump scares or special effects This is the perfect kind of Friday night thriller to have you on the edge of your seat for the duration. I have left the trailer at the bottom of this post for you to look at at your leisure Thanks for your time. See you guys next week!
Disability Limbo Newsletter
I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters
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