Category: Disability Awareness

  • Patience Is A Virtue: Nick Takeover

    Patience Is A Virtue: Nick Takeover

    How One Finds Balance Between Dependency On Others VS Self Advocacy

    By, Nicholas Taubenslag

    As children, we depend on parents to guide, teach, and for emotional support. They guide and teach us what’s wrong and what’s right. Whenever we have a negative experience that hurts our self-esteem we lean on them to help build it back up. For example, In the school years of my life I was emotionally tormented by bullies whom I thought were “friends”, however, I came to find out for myself they weren’t thinking in my best interest. My parents taught me that it’s important to forgive those people internally. Forgiveness is not condoning the other person’s behavior and/or actions by any means. It’s about finding a small measure of peace within oneself. Jesus Christ illustrates this point perfectly when he stated on the cross

     Jesus said, “Father, forgive them, for they do not know what they are doing.” And they divided up his clothes by casting lots."
    Luke 23:34 NIV

    There comes a time in every person’s life when he or she needs to gradually learn how to ask for themselves what they want or need from others. For instance, my first taste of asking for what I wanted was when I was about four years old. My mom and I were at a bagel store. I wanted to get myself a “mini bagel”. I then asked my mom to get me one once we got to the front of the line. She said, “ If you can find a way to get to the front of the line in a polite, respectful, and courteous manner you can ask for it yourself.” So, I said please excuse me to every customer in front of me and when I finally got to the front of the line. I politely asked the employee If I could please have a mini bagel. As you can imagine I was overjoyed with having my prize. I didn’t realize at the time that later in my life I’d realize that Self Advocacy was part of my life purpose.

    As a Boy Scout earlier on in my life. I always had to treat everyone with kindness, love, and respect. When I needed assistance in order to complete merit I learned to partner with others to complete the badge. We were taught in scouts to do a good deed daily for someone else. In turn, the other person is willing to help you out. 

    One lesson I have learned in my life is not to act impulsively without thinking or consulting someone prior. The key thing is to have patience and release control over the desired outcome once we do that things flow a lot more easily.

    You’re probably asking yourselves how do I find the balance between depending on others and going ahead without their help or advocating for yourself. From my own experience, it takes patience, resilience, and never giving up. When asking for what you want it’s important to ask in a calm, polite, and respectful manner. There is a famous statement that illustrates this point perfectly. “You get more with honey than you do with a sting.” Everything takes time to get things done. 

    To sum this all up, With patience, a calm demeanor and resilience one can achieve anything their heart desires. May we all one day be able to ask for what we want confidently.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • VOLUNTARY HOSTAGE SITUATION

    VOLUNTARY HOSTAGE SITUATION

    The following post was written by Ali Ingersoll as a simple Facebook post that I absolutely loved because it describes the life of a person with a disability better than I ever could. She is an outstanding disability advocate and blogger you can find more of her work on her website Quickly Quad Diaries

    This is hard to write – perhaps harder to deal with than chronic debilitating nerve pain. When you are physically disabled and require 24/7 help to take care of all of your daily needs it requires a village – caregivers, family, friends, agencies, medical professionals, etc.

    I need to first start out by saying that anyone willing to help me, paid or not paid, physically live my life each day is such a beautiful gift and I appreciate every single human who takes time out of their life to make my life possible.

    However, there is a side of life many of you who do not live with a disability cannot possibly see because much of it is hidden. My life is my own, but it is not at the same time. I can’t do what I want and how I want to do it at all times.

    I have to be mindful of those who take care of me. I have to make sure they feel safe, compensated, loved, taken care of, and appreciated. This is important. Anyone who is helping me is responsible for making sure I physically stay alive each day. While I might direct my life I don’t always have control at the same time. This can be emotionally crushing at times.

    How so? Well, if I am not carefully managing the multiple emotions of people in my household to make sure they remain happy and healthy then they either will not be able to take care of me or will not want to. Many people feed off my positivity and determination. This is not to say I don’t have my hard days, but who wants to the care of a person who is grumpy or angry or running a drill Sgt. type of life each and every moment?

    If I want to snack at nighttime I have to ask someone for it. I can’t simply get up and get it myself. However, if I just asked that person to do four things in a row for me by getting up and down they might get a little bit annoyed with yet another thing I ask them because they have been running around for me. I have to strategically think about how and when I ask for things.

    At times I feel like I have become my own emotional hostage. I have to push down many of my personal emotions to make sure others around me are emotionally taken care of before dealing with my own personal emotions at times. This is hard. This can feel so lonely. Often times, I feel more emotionally disabled than I do physically. However, this is my choice. It is a decision I’ve made.

    My life hinges upon the way other people feel. Think about this. Critically. If you are able-bodied and you want something, you simply get up or go out and get it. I can’t do this. Sometimes I sit and cry to myself at night after a long day because everyone else around me is having a hard day, so I need to take care of them, so they will take care of me. It’s a give-and-take, back and forth, and it can be utterly emotionally draining.

    I know this is my life. I don’t often complain. I keep pushing forward, but it can be devastating at moments. I’ve learned to live this way for the last 12 years, and I am strong, but even I have my moments. I do know many of my friends who have a strict line between church and state with respect to making sure people’s emotions do not bleed into their own lives when they are being taken care of.

    I have tried this. It has failed for me. If I do not take care of those around me then those around me may not have the will or desire to help me.

    People around me thrive on my positivity and go-getter attitude. This is great, and most of the time I compartmentalize many of my emotions. I’m not saying this is healthy. It is not. However, this is my life. This is how I’ve had to adjust and it can be utterly terrifying. Truly.

    My biggest fear is being left alone and not having anyone to have my back so that I don’t physically die in a day. The simplest of things can kill me – my catheter getting clogged and overfilling, being alone, and having a stroke. It can happen in 30 minutes.

    So, I have somehow willingly put myself in my own mental hostage situation. It is hard. It is life. It is my life. These are the compromises I have to make in order to have a household of people around me who want to be around me, and help me.

    I only ask that the next time you get up to go get a cup of coffee or tea you think about how you are able to do that on your own. You don’t need help. Just take a moment appreciate your fully functioning body is all I ask.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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    Thank you for your response. ✨

  • When One Door Closes Another One Opens

    When One Door Closes Another One Opens

    By: Nicholas Taubenslag

    NOTE: I am very excited to welcome my very first official contributor Mr.Nick Taubenslag. You can find out more about him by clicking on the writing team. tab. Kevin G. Nuñez

    We all have issues to change and work on.  It’s the paradox of two different mindsets that we can choose to have in our lives. The two different mindsets are “The Victim” and The Champion.” It all depends on how we individually look at ourselves and our present reality.

    When in the victim one can feel several emotions from anger, depression, and sadness due to past negative experiences. The reason behind this mindset is a lack of self-confidence and limited self-worth.  Some  questions in this mindset that we  might ask ourselves are: “What’s in it for me?”  “Why have these past situations affected me so deeply?”, “Oh poor me if only I could go back in time and do it all over again.” This mindset only leads to a lot of ruminating thoughts, seeking professional help, and being stuck in a mental quicksand which could be exhausting to pull ourselves out of. The victim focuses on a selfish mindset. It’s more focused on the immediate gratification of our own individual needs.  For example, worrying about how much money one is going to make in order to survive. Over time a person in this mindset gets burnt out and loses the much-needed courage to change this mindset into a more uplifting one.

    The champion mindset is centered around treating others with kindness, love, and respect. Their internal outlook is one of self-confidence, unconditional self-love, compassion, and inner strength. Some questions that a person with this mindset might ask themselves: “How may I serve you?” “What is my life purpose?” and  “What are my goals in life?” Having this mindset tells the universe that we want to make a difference in people’s lives.

    In 2021, I had some very scary events. I was on many different meds. While I was on these meds I sunk into a deep depression. As a result, I had to move back to my parents house.  I didn’t know how I was going to pull myself out. Luckily, I had my parents, men’s group therapy,  my counselor, and a famous hypnotist to help pull me out. I tried working out among other things to try and pull myself out.  I was stuck in the victim mindset at first but trusted my intuition to heal and become a champion. 

    The lessons of 2021 were courage, help from others, and resilience. My family motto illustrates this section perfectly. It’s all about never giving up and always trying. If you try your best you can accomplish anything.

    Ever since going to New Jersey Partners In Policy Making back in 2019 I have been living my life purpose of self-advocacy specializing in expanding transportation options for people with disabilities. I also have been accepted into Jespy House, an independent living community with a social outlet already built with numerous clubs built-in. As well as mental health built-in. It’s like I am on the verge of becoming a champion in my own right. 

    What this past year has taught me is to have relentless courage, determination, and a positive outlook on life. A very wise former Admiral Navy Seal William H. McRaven Author of “Make Your Bed Little things that you can do to change your life and maybe the world.” illustrated this point perfectly when he wrote in his book “never ever ring that bell.” which is a sign of quitting. 

    In conclusion, A very wise man once asked, Are we here for a season or a reason? If we are here for a season we are like a leaf on a tree when its time is finished it just blows away in the wind, in other words, forgotten. However, if we are here for a reason we will have lived a life with genuine kindness, compassion, and action. By having this question in the forefront of our minds we can all become champions in our own lives. When one door closes in our lives,  I strongly feel it’s a huge opportunity to train ourselves to go the distance and come out the other side to open that door to a better future.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

    ← Back

    Thank you for your response. ✨

  • Get to Know Each Other

    Get to Know Each Other

    Hello everyone, let’s spend a few minutes together and escape from life. I wanted to have some fun today. I designed this website and blog to be an ongoing conversation to bridge the gaps between the disability community and the general public conversation but I can only give you one perspective. I need you guys to get involved as well, Therefore I came up with this list of questions for anyone who takes the time to read it. Feel free to answer all questions or as many as you feel comfortable.

    "My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
    Psalms 73:26 NIV"
    1. This should be obvious, can someone give me an accurate description of what it’s like to run?
    2. It always takes me about an hour and a half to get ready for the day with the help of others. How long does it usually take you to get ready for the day?
    3. What is the first thing you think of when you see someone in a wheelchair or some other visible disability?
    4. Do you put your socks on before or after you put your pants on? I never really have a choice, so I never really thought about it.
    5. I know I need help in the bathroom; I have to inform people. Why do people always announce it when they leave the room?
    6. Every parent wants a “healthy” child, what exactly is that to you?
    7. What exactly is so “inspirational” about people with disabilities?
    8. We live in a world where physical appearance is idolized, what is so hard about looking at the person?
    9. Why do people want to spend so much time alone on the toilet? Balancing is tricky for me. I want to get off of that thing as soon as possible. Why do you want your leg to go numb?
    10. How long can you stand up before you feel tired?
    11.  How long can you sit down before you feel tired? 
    12. What’s one physical activity that you’ve always wanted to do? My list is a little long.
    13. What’s one fear when you socialize or date someone with a disability?
    14. f you had my disability what would be the one thing that scares you?

    I hope this made you laugh, or at the very least give you something to think about. Do you have any questions for me? That you want me to answer in a blog? See you next time.  Have a great day.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

    ← Back

    Thank you for your response. ✨

  • Ensure Privacy for People with Disabilities

    Ensure Privacy for People with Disabilities

    The following was written as an Op-Ed advocate for pending legislation in New Jersey in February 2022. Hope you enjoy and have a good day

     My name is Kevin G. Nuñez I am a thirty-four-year-old Puerto Rican male living with Cerebral Palsy. Ensuring and protecting the rights of people with disabilities is what  I have been doing my entire life.  I immigrated with my family to New Jersey at the age of four. Due to the nature of my disability, I use a wheelchair as my primary tool to live my life.  I have my daily struggles to overcome and try to live my life the best way I can. I need to use this platform to bring attention to an issue that does not enter the public consciousness when it comes to the disability population.

    Like most individuals with disabilities, I use the assistance of a Direct Support Professional (DSP) with my personal needs daily.  When I want to visit my family, I must take a three-hour and twenty-five-minute flight. Despite what Hollywood movies might have you think, the bathroom on the plane is not large enough to fit two people, or even one person using a wheelchair.  After I use the restroom at the airport, I am the first person to board the plane. I do not move for the duration of the flight.  Finally, I am the very last person to get off the plane. I can guarantee you it is not comfortable at all. By the time everyone gathers their belongings and gets off the plane another thirty-five to forty-five minutes has gone by.

     At this point, Mother Nature has my full attention. When I get to the next accessible bathroom, there is always someone in the handicap stall; peacefully stretching their legs in a space they don’t need to be using because they don’t have a disability. This leaves me with two options.  The first is to wait until they’re done and at best get a halfhearted apology. My second choice, I am forced to relieve myself in the corner of the restroom by exposing myself and urinating into a  plastic urinal bottle. Females with disabilities do not have the same luxury.

    Thanks to Assemblywoman Carol Murphy a Bill was introduced that requires business owners to put up signs on these specific bathroom stalls to discourage people from using them inappropriately. Provided there is more than one stall.  The Accessible Restrooms Sign Bill (A467/S1239) Needs to be made a priority, This is a human rights issue! It has gained bipartisan support. We are still awaiting committee review in the New Jersey state legislature. This legislation secures dignity and respect in this private moment that all humans should have.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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    Thank you for your response. ✨

  • Subconscious Genocide

    Subconscious Genocide

    Hello once again, I hope your Wednesday is going well. The reason I wanted to wait till March to relaunch my blog is that March is known as disability awareness month in the United States. It’s usually seen as a celebration of how far our community has come in the last few years. I want to use this opportunity and this platform to bring attention to those of us that have been forgotten. Not everyone can post on Instagram or come up with a fancy new hashtag. Those of us who can speak must stand for those who have no voice.

    A few weeks back in a nursing home In Sussex County New Jersey Just under 200 individuals with various disabilities were found locked away in horrible conditions. According to reports linked below, countless rooms smell like urine and feces. By the time most of you are reading this the world is probably moved on to the next story and lawsuits have already been filed what about the people themselves? What are their stories? Has their suffering ended or did they just get transferred from the facility where they’re still going to be abused? I know the system is overwhelmed and understaffed but that said the reason why this happened. Instead of Googling the latest TikTok craze, I asked that you take a few minutes to investigate this. This is not an isolated incident. I think what hurts the most, is that this situation keeps recurring. The coronavirus pulled back the curtain on this horror show.

    Generalizing something like this happens, when an individual with an intellectual disability suffers a stroke. They do not recover fully and because the system does not have enough medical group homes They are forced into these programs that cannot meet their needs accordingly. Having a disability is not equal to aging.  I once knew a man who went through this exact scenario at 55. participants from his day program were the only visitors. I am saddened to say he’s no longer with us. I believe he didn’t make it to his 60th birthday. This took place years before there was a global pandemic. Who you think anyone went to his funeral?

    “Blessed are the merciful, for they will be shown mercy. Blessed are the pure in heart, for they will see God.” Matthew 5:7‭-‬8 NIV

    There are plenty of systemic issues because the system is not centered on the person It’s focused on protecting itself from lawsuits and avoiding blame at all costs. The human service industry In its entirety at a given point took on its own life force. It has become a runaway train coasting down the track. What can we do to stop it? I don’t have the answer to that but I can tell you we need to focus on the little things. There’s no reason why the staff cannot take the clients out on a walk. I’m not exaggerating, read the articles for yourself. 

    The reason why this subject hits so close to home is, I know If it wasn’t for my family This could have been me. Imagine going to bed but never being able to get out of it. We don’t see value in people with disabilities. I tried to think of a creative comparison, It’s not like prison because they have committed no crime. It is different from slavery because no one is benefiting from their silent pain. We have created a subconscious genocide by ignoring those who need us the most. Wake of America!

    Source Material:

    https://www.nj.com/news/2022/02/nearly-200-people-are-locked-down-living-in-inhumane-conditions-at-nj-nursing-home-advocate-says.html

    https://www.nj.com/news/2022/02/residents-lives-at-extreme-risk-feds-say-as-they-threaten-to-essentially-shut-down-troubled-nj-nursing-home.html

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

    ← Back

    Thank you for your response. ✨

  • Coming  Back from Everything

    Coming Back from Everything

    Salutations and best wishes I look forward to our time together. After a few months of hiatus, I decided to relaunch my blog and website. I know some of you probably wondered if I died.  I can assure you I am very much alive and I feel better than ever. Just like this website I took a few months and redesigned myself. I invite you all to please click around and check out all the features. I know there isn’t much but all the important stuff is there. I’m going to use my life as an example but I don’t want this to be a blog about “Kevin and his disability” I want to focus on the human experience and help others grow spiritually and mentally. The world is tough enough as it is  I hope for a few minutes every week, I can take you out of it.  to find a little extra something.

    "Neither do people light a lamp and put it under a bowl. Instead they put it on its stand, and it gives light to everyone in the house."'
    Matthew 5:15 NIV

    For all my new followers here is a quick synopsis of who I am. My name is Kevin G. Nuñez. At the moment of this writing, I am 3/4 of the way to my 35th birthday. That sounds weird to say, worse to stop and think about. I want my writing style to come across as a conversation between friends. I want to talk with you as the reader not talk at you. I was born and diagnosed with a developmental disability Cerebral Palsy. It is a neurological condition That affects the spinal cord in the brain. The single gets sent from the brain down my spinal canal but somewhere along the line, there’s a disconnect. Turn a key in a car, but it dies at the point of ignition. This is the best conversion I can make. I’ve been privileged to serve on various committees on both the state and national levels to ensure the rights of all people and families affected by disability. Before you ask I have not been paid for the representation I have done to this point. Not all labor should be done for financial gain. If you want more information on this aspect of my life please check out my advocacy resume on the about me page.

    Doing the same activity over and over expecting different results Is the definition of Insanity. So, What makes this website different than other blogs?  To start with I have changed the name. It always irritated me to have my name on the website. I couldn’t think of any other names. I know the URL is the same but that’s only for lack of funds. I want to focus on the quality of blogs instead of quantity. There was a time when I was publishing two blog posts a week, a podcast episode, and publishing my first book all at once! By the time the book was posted on Amazon for purchase in July I was creatively exhausted. This time I will be posting only once a week on Wednesdays for 26 weeks out of the 52 week year. from March 2022 To March 2023.  I’m still going to be writing every day I’m currently working on a follow-up to my book.

     I will periodically drop book excerpts. In addition, I have all my original posts from the last website. So there will be plenty of content throughout the entire year.  A steak is always better than a hamburger, right? 

    Each post will focus on a different aspect of disability life and spirituality. challenges in life are not always bad, sometimes we need them to persevere in our circumstances. the disability community is still second-class citizenship. I hope we can change this by starting a dialogue after each post. I welcome all comments and feedback.  If you guys want me to cover a specific topic please let me know. I can’t wait for our next conversation. 

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

    ← Back

    Thank you for your response. ✨