Category: Disability Awareness

  • Breakdown of Me Before You

    Breakdown of Me Before You

    Is there a book you’ve read more than once? Don’t worry, this is not another shameless plug for my book. I’m going to talk about another book. Admittedly, I’m more of a movie buff than a bookworm. I can count the books I’ve read more than once on one hand. For me to do that, the book must stand out. I want to start a new series on my blog where I break down books and other sources of media featuring The disability community. I know this is not a new idea, but I never claimed to be original. For this first installment, I will be discussing the film and book Me Before You by Jojo Moyes I both love and hate this piece of fiction.

    Please note that this book and film are over 10 years old, and I will be discussing spoilers. So, if you don’t want the ending ruined for you, come back and read this later Emma Clark, the female protagonist, is one of my celebrity crushes. The only reason I watched the movie in the first place was because I read the book after watching the movie. I am writing this before I purchase the audiobook. I am recommending this book and film. However, there are a few things you should know first.

    Therefore we are always confident and know that as long as we are at home in the body we are away from the Lord. For we live by faith, not by sight. 2 Corinthians 5:6‭-‬7 NIV

    Quick synopsis Will Traynor was once a very athletic and active young man before becoming paralyzed. His mother hires Louisa Clark to accompany him and perform some caregiving tasks, but not any of his private ones. Another caregiver looks after those. It is clear from the outset that the disabled character is depressed and missing his former life. As often happens in the beginning, they are both annoyed with each other before falling in love. After overcoming hardships and learning to trust each other with their most intimate life details, like a sexual assault that occurred to the female character, It is revealed that Will had planned and assisted suicide a year prior. Unfortunately, it does not end happily, as he follows through with those intentions.

    Before I begin, I want to say I am not a paraplegic or quadrilateral. I was born with a disability. Every person is different, and every person living with a disability is different. It is not for me to say If the character is an accurate representation of a quadriplegic. I usually don’t enjoy first-person narrators. This is overused in young adult literature. Keeping this story from the point of view of Louisa not only keeps this story interesting, but it also serves as an educational piece to teach outsiders about disability. It’s okay to show that disabilities can be intimidating. Having a disability can be overwhelming at times The disability community does not serve to inspire the rest of society. No one with a disability is positive all the time. Struggles with mental health are real. People with all kinds of disabilities can have successful romantic relationships, even quadriplegics.

    The idea that individuals with disabilities often harbor thoughts of suicide explains Will Traynor’s desire to end his life. This portrayal oversimplifies the complex emotions experienced by people with disabilities Just because someone has a major disability does not mean they wish to end their life. I truly believe that pieces of media like this unintentionally feed the idea That we should be put out of our misery. We are not dear on the side of the road. We are human beings with the same rights to live as anyone else.

    Another stereotype the book addresses is the belief that love cannot flourish in a relationship involving a disabled person. Louisa and Will’s connection is depicted as profound and heartfelt. However, the story inadvertently hints that love can only exist in the face of pity and tragedy when one has a disability. This portrayal undermines the possibility of genuine love in such relationships.

    Literature like this can inadvertently propagate negative stereotypes. When books consistently depict individuals with disabilities as trapped in despair, they reinforce biases and restrict opportunities and expectations. As responsible readers, we should approach such stories with a critical perspective and use them as a starting point for conversations that challenge these stereotypes. By doing so, we can contribute to a more inclusive society where individuals with disabilities are recognized for their unique strengths and abilities rather than being confined to harmful clichés.

    Sources:

    https://www.jojomoyes.com/books/me-before-you/

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • Hope for Disabled Travelers

    Hope for Disabled Travelers

    Greetings readers, Now that summer is over and everyone is back from their vacations, I thought it’d be a good time to advocate for some systemic change. Traveling with a disability is an absolute nightmare. Despite what Hollywood movies might have you think, the bathroom on the plane is not large enough to fit two people or even one person using a wheelchair. After I use the restroom at the airport, I am the first person to board the plane. I am removed from my wheelchair and placed on the aisle seat. This is a device resembling Hannibal Lecter’s transportation flight. You can see a full description of this device in the YouTube video. Then I am placed in a regular airplane seat.

    “lest you lose your honor to others and your dignity to one who is cruel,” Proverbs 5:9 NIV

    I do not move for the duration of the flight. Finally, I am the very last person to get off the plane. I can guarantee you that it is not comfortable at all. By the time everyone gathers their belongings and gets off the plane, another thirty-five to forty-five minutes have gone by. I do not go on long-distance flights What if I have to use the bathroom? I’d have to expose myself in front of the entire airplane. What would I do if I were a female?

    A person with a disability may find it difficult to navigate an airport and board an airplane, especially if they use a wheelchair. Transfers are often difficult because traditional airplane seats are not always accommodating. These passengers’ difficulties are further exacerbated by the cramped quarters and difficult-to-access restrooms onboard.

    Delta’s Air4All prototype takes a giant leap toward enhancing airplane accessibility. With the idea of removable seats, spaces for wheelchair users would take the place of traditional rows. Allowing individuals to remain in their wheelchairs not only ensures their comfort but also promotes their Self-determination. This innovation celebrates the independence of passengers with disabilities. This ground-breaking design lets wheelchair users remain in their own chairs, maintaining their comfort and dignity. Boarding and deplaning would be streamlined and much more user-friendly for the individual. This is still in the early phases, so advocates need to speak up now!

    Delta’s Air4All is a beacon of hope for accessible air travel. By introducing removable airplane seats to accommodate wheelchairs, Delta is transforming the flying experience for individuals with disabilities and encouraging other airlines to follow suit. As we soar toward a more inclusive future, let’s unite to ensure that everyone, regardless of their physical abilities, can experience the joy of taking flight.Thank you for reading, and I hope to see you guys next week. You can find the sources below.

    Sources:

    https://www.travelandleisure.com/delta-wheelchair-prototype-air4all-7509744

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • disabled student school survival guide

    In the second episode of August Kevin of the Purposely Broken World, he breaks down what it was like to be a disabled student in New Jersey. This list of personal anecdotes and advice for future students should provide Liberty and information. To all, don’t be ashamed of your own disability.

    Order Confessions from Disability Limbo here:
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    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • the Mystery of Disability Pride

    the Mystery of Disability Pride

    Spotify
    YouTube

    In the first episode of August’s Purposely Broken World, Kevin brings up disability pride and what it means to him. Faith plays a significant role in Kevin’s disability Identity. Kevin recounts personal stories of discrimination.

    Disability history is American history. Judy Humann, Brad Lomax, and the 504 sit-ins should be taught in schools. Financial discrimination and disability discrimination are still prevalent in today’s America. Feel free to join the conversation.

    Show Notes

    504 sit-in: https://en.wikipedia.org/wiki/504_Sit-in
    Crip Camp trailer: https://youtu.be/XRrIs22plz0
    Disability Pride:https://en.wikipedia.org/wiki/Disability_Pride_Month
    Bible Verses
    I consider that our present sufferings are not worth comparing with the glory that will be revealed in us.
    Romans 8:18 NIV
    https://romans.bible/romans-8-18

    “Neither this man nor his parents sinned,” said Jesus, “but this happened so that the works of God might be displayed in him.
    John 9:3 NIV
    https://john.bible/john-9-3

    Show Information
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    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • The Dog Days of Life PT 1

    The Dog Days of Life PT 1

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    In the July episode of The Purposely Broken World, Kevin breaks down the worst day of his life to shine a light on depression and disability. Spiritual growth helped him find the light. Spiritual growth is just as important as mental and physical growth. In order to go forward, sometimes we have to reflect back. Subscribe to join the conversation.

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  • My SABE Second Chance

    My SABE Second Chance

    Have you missed an opportunity, and it became a nagging thought in the back of your mind that you couldn’t shake? Not necessarily regret, simply something you always wondered about. A “what if” moment. Second chances don’t come along that often. especially if you have a disability. Most of the time, we don’t get a first chance. Well, for the first time in my life, I’ve been blessed with this second opportunity. I’m scared to take it, but I know I’m ready for it.

    In case you didn’t read last week’s blog, here is a quick synopsis. In 2018, I attended the national SABE conference. Self Advocates Becoming Empowered is the leading independent advocacy organization run by and for people with disabilities. Every voting member on their board has to have a disability. The representatives divide the country into regions. New Jersey is in Region 7. Along with Pennsylvania, Delaware, Washington, DC, Maryland, Virginia, and West Virginia. At the last conference, I was given the opportunity to represent my region as an alternate. It was kind of last minute. I made a bunch of excuses and decided I wasn’t ready. The next conference was in 2020. That would have been plenty of time to make the right connections.

    Honestly, over the years, I moved on from SABE. I thought it was going to be one of those moments in life. It’s been 3 years, and I haven’t had a conference due to the global situation. I was recruited to serve the region on an income basis. Until the next national conference Why me? I don’t deserve to do anything. So many people have died in the last three years with disabilities. How can I be their voice? I’m a goofball by nature. How can people trust me?

    I’m a firm believer in God’s timing because it’s no coincidence that this opportunity opened back up after my big brother Jesus found me and picked me up. One of the things I have to do is put together a regional conference. A conference made up of every state that I will be representing to educate and collaborate on disability issues. Apart from all the duties of the national organization. I will not lie; I’m more than a little scared. Intimidation is an understatement.

    New Jersey is a small state, and the advocacy community is very small. The organization and the region have been on hiatus. I have to make all new connections and all new contacts. There hasn’t been a regional conference in over 10 years!

    "When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze." Isaiah 43:2 NIV 

    As I’ve said before, I never got to finish college. If, through the glory of God, I get to put together this conference, this will be my graduation. This is the hardest thing I have ever attempted. Zoom and Google Workspace will be tremendous resources. Something that was not discovered years ago. I need to give a huge thank you to the New Jersey Council on Developmental Disabilities for sponsoring me on this journey. By the time this is published, everything should be made official. Someone smarter than me once said, “Life begins outside your comfort zone.” This may not be professional for a blogger, but I’m asking that if you took the time to read this, please pray for me. Not for success. That’s all for God. I’m just looking for wisdom and strength. Never give up, because God won’t give up on you!

    Special Announcement

    I will be taking a small break for the rest of the summer to finish the first draft of my book. Confessions of a Wise Fool. The first draft is always the hardest and I want to get finished before I start working with SABE. I will be back with more blogs after Labor Day. I promise I will still be doing podcasts, so stay tuned to the website! Enjoy the summer.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • Missing out on SABE

    Missing out on SABE

    2020 Reflection

    Note: The following blog was written in 2020 based on my life experiences. There have been some major life events that have occurred regarding this portion of my advocacy journey. Before I share that, I must share this for context. I hope you enjoy it, and I will provide part two next week.

    The word independence always makes me laugh. Individuals with disabilities are always pushed to be more “independent.” No one is truly independent; we all need a little help. I need more than most; there’s no denying that. I have a very good support system to help me live my day-to-day life. They help me with such things as bathing, dressing, and bathroom necessities. For me, this is not a big deal. It is the only way I know life. If and when I do anything out of the ordinary, that’s when things get a little bit more complicated.

    As I mentioned previously, my life as a disability advocate was very unexpected. I’ve been presented with several different opportunities, and I do my best to capitalize on as many as I can. At this stage in my life, I want to make as much of an impact on the lives of others as possible. I want the work I do to last. I don’t want a fancy award or a statue. Just to see tangible evidence of what I have done. The proof will be seeing the smile on someone’s face. The majority of my work focuses on system change. I don’t work against the system; I work within it to come up with common-sense solutions.

    I was recently given the biggest opportunity of my disability advocacy career, but I don’t know if I can do it because of my disability. Trust me, I know how ironic that sounds. The position is as follows represent seven states on a national level to advocate on their behalf. The organization is called SABE.

    Self-Advocates Becoming Empowered is a national self-advocacy organization. Run by and for people with disabilities, completely independent of any political affiliation. In July 2018. I attended their national conference. I was asked to seek one of the representative positions. I would represent seven states as their lead advocate. I decided then that I would give myself two years to get myself ready and make all the right connections.

    I would only have to travel four times a year to attend the organization’s meetings. The rest I can do remotely thanks to modern technology like Skype and FaceTime. The tricky part is that I have to find one person who is willing to travel with me to help with my personal care four times a year for a 2-year term limit. Not many people would trust a stranger with personal tasks like this. I can’t help but feel guilty. I always feel like I’m bothering someone in some way. There is so much planning and preparation that takes place beforehand. Most get scared off. I do not have a lot of medical needs. Getting me ready for the day and getting me ready to go to sleep are the hardest parts. It’s those little things that people take for granted. That’s one of the main reasons I started this blog. I want to raise awareness about the real lives of people with disabilities.

    I’m not afraid of doing the work. Some people will be hard to deal with. I am sure about that. I still have to write up the proposal to acquire the funds I would need to attempt this venture. I know I must try. The purpose of life is to live life. I know there’s a good chance I will fail. Even if I get everything I need, there’s no guarantee I will win the election for the position. I don’t want to say, “What if?” I want to say, “I did.”

    “In their hearts humans plan their course, but the Lord establishes their steps.” Proverbs 16:9 NIV

    2020. I laughed while typing those numbers. The year the world changed, I spent two years calling people in different states. I would tweet their state organizations to introduce myself. To get ready for the next conference. I found people willing to do my personal care. Like everybody else, they postponed their conference, but not by one year but by two instead. 2022. In today’s world, that’s a lifetime! The disability community has always had a lot of turnover. In two years, every person I talk to will most certainly be gone.

    I never say never to anything, but it’s impossible to know where my life will be by then. Planning from 2018 to 2020 was easy because the world was in its established routine. Now there is no routine. One of the main reasons I wanted the position was to travel across the country four times a year. I’ve only ever gone to Puerto Rico and Disney World. It would have been cool to see new places.

    I am looking for a new opportunity to make a difference for both the world and myself. What opportunities have you not taken advantage of? What things have not worked out for you? I hope this gives you something to think about. Thank you for your time. Another blog will come next Wednesday, as usual. All comments are welcome.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • Manhood & Disability

    Manhood & Disability

    PWB June 2023

    Spotify Link
    YouTube link

    Who knows what it’s like to be a man in 2023? In the June episode of the Purposely Broken World podcast. Kevin breaks down what it means to be a man with a disability. Hopefully, this will start a thoughtful discussion about manhood and positive mental health awareness. Everything from empathy and sexuality to responsibility.

    Find additional resources here: https://throughtheword.org/manhoodtalks/
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    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • Lessons From Chess

    Lessons From Chess

    Hi friends, I hope everyone is having a wonderful Wednesday. What are some of the hobbies or sports you like to participate in? I am 35 and have limited mobility due to my disability. So my options are limited. Yes, there are challenge or baseball leagues, and the Special Olympics has every sport you can imagine. I’m at the age where most other participants are either way too old or way too young. In addition, the concept of everyone getting a trophy or metal at the end doesn’t seem right to me. Most importantly, it would take 50 more steps if I just wanted to play wheelchair basketball for an hour. What if I just wanted to distract myself for a few minutes? Yes, there are plenty of video games with adaptive controllers. That truly is wonderful. However, I wanted something more realistic and a guaranteed challenge.

    “for gaining wisdom and instruction; for understanding words of insight; for receiving instruction in prudent behavior, doing what is right and just and fair;” Proverbs 1:2‭-‬3 NIV

    I recently discovered chess. I know the game of chess has been around almost forever, but it really is a brilliant game, and it has so much to teach us about life. I picked up the following lessons from playing the game, among others Have a good day, everyone. Let me know in the comments if anyone has tried playing chess and what they’ve learned from it

    • No matter how much you can or cannot move, you can still play even if someone else moves the pieces for you because every piece and square on the board has a name.
    • Chess is not for nerds! It’s a very social game you can always learn from other players. Especially in today’s world with players constantly streaming their matches. Players of all races are represented. There’s always someone waiting to connect even if it’s just to teach or play a game.
    • I currently have the lowest rating in all of Chess, but it is almost impossible to play the same game twice so you always constantly being challenged and learning a new strategy.
    • Every piece on the board has a specific role you have to see the big picture. I specifically enjoy this aspect because we get so focused in this world about what we’re doing in the moment we never take a step back to look at the whole board of life.
    • Most people when they start a plan of any kind. Get excited when they start a new project but lose interest in the middle and never get to the end. In chess the middle game is where the challenge really begins. The game will not end until the king is captured so you constantly have to keep adapting to a new scenario.
    • After you play games, you have to study your mistakes. In life people don’t want to learn from mistakes but in chess if you don’t analyze your past you can’t get better in the future.
    • Chess does not require physical strength, but strictly. Your mind and your heart working together.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • God is Accessible

    God is Accessible

    Hello, wonderful humans! Most people will say that God or some divine force is always with us, but how do we get access to him? It’s easy to save things like reading the Bible or going to a house of worship. Let us do that. However, what if you can’t read or get out of the house easily? The tagline for this website is “Disability and Spiritual Awareness.” I believe this post will embody that message. I identify as a Christian, and this is part of my spiritual journey. I have no intention to start a spiritual debate at this time. These are the tools that I use daily as a person with a disability to spend time with our wonderful creator. This list of resources is based on my personal experiences. Click on each link to learn more. If this topic does not interest you, you are more than welcome to come back next week.

    All Scripture is God-breathed and is useful for teaching, rebuking, correcting and training in righteousness, so that the servant of God may be thoroughly equipped for every good work. 2 Timothy 3:16‭-‬17 NIV
    • YouVersion/ Bible app This is the most popular app people use because it is available in multiple languages and can be read to you in various languages. You can also highlight in different colors. I can read however with my disability my eyes don’t always want to track To the end of the line. My eyes like to jump down a few lines. It’s not like dyslexia where the letters get jumbled up. I can read effectively it just takes a lot longer.
    • Through The Word(TTW) When I began my journey through scripture, I did not know where to start All I knew is I couldn’t start on page one. In an audio guide, a pastor breaks down each chapter. A one-on-one Bible study. Right there in my headphones. All the themes are separated into journeys. Most of the pastors are men, as a disabled man sometimes it is more relatable to hear from another man. They just did a series called The Manhood Talks To encourage men with faith issues.
    • Blue Letter Bible This app is designed specifically for Bible study It has tons of audio guides and commentaries to break down scripture. When you study the word you always have tons of questions This app helps answer them.
    • Day One Journal This is not an app designed for Bible study. This is where I write down all my thoughts and prayers at the end of the day. I love Jesus but I’m not really good at talking to him throughout the day This is how he and I spend quality time together.
    • Vizion Church-YouTube Since the outbreak of the pandemic, there have been thousands of virtual worship services. I wasn’t sure which one to try because all of them are fake and want money. I was determined not to join any of them. One day, the Holy Spirit said to look up the prodigal son. I came across Pastor Tyson’s sermon, and something just clicked. I don’t know how else to describe it. Since June of last year, I have not missed a Sunday service The pastor doesn’t know who I am. The only one who interacts with me is whoever runs the chat on Sunday live session The Holy Spirit does the rest.
    • The Righteous of God Facebook Group Another part of my stubbornness was that I would not join any Facebook groups because those are where most of the hypocrites are. Anyone can post anything they want, but do something different behind the screen. This group is run by an old friend of mine from school A person who’s not ashamed of their past and is not afraid to tell it like it is. They have several discussion boards and will always respond to every question. The leaders of the group will simply be there for you.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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