Have you ever felt burnt out? That’s what I want to talk to my readers about today. This is one of those posts that I’m going to love to write but someone is either going to say I’m mentally unstable or completely naive. I’m writing this because I know I’m not the only one. I’m not depressed, I’m actually in a very good mood right now. Life is complicated. We all know that it’s how we compartmentalize those complications that matter. ask any mom if they have all locked themselves in a bathroom for 15 to 20 minutes just to get a break from their kids that they love more than anything. Any father has been known to blast the nastiest music when the kids step out of the car just because they’re tired of listening to Baby Shark. There is a day of the week that we’re supposed to rest and not do any work. Whether we take advantage of it or not is a whole different story but the day is there regardless. I can’t rest. I have disability burnout!
“aren’t you sitting down in your wheelchair, so how can you be tired?” Let me be clear I absolutely and unequivocally love my life. I don’t want to change it. I love answering kids’ questions in public, even though their parents can sometimes be jerks. My father, who is my primary caregiver, can be one of the funniest people in the world. That doesn’t mean I don’t feel like a burden sometimes when I can see he is exhausted after taking me back and forth to doctor’s appointments. I thank God every time I get a chance to write a policy for those who cannot speak for themselves. My eyes still get tired at 11:30 at night when I’m still looking through my emails. Being broke is not fun but I’ve never gone hungry or gone without a roof over my head. I don’t need to get married tomorrow but it would be nice to be truly missed by someone special when they had a bad day. getting that look that says “ I want you right now!”
The hardest part about having a disability it’s not all the physical things I can’t do myself. is the fact that there will never be any days off. I don’t get to walk on Sundays. It’s not like losing 10 lbs by going on a diet. all the physical therapy in the world can only do so much, and I love my physical therapy sessions. Some parts of my body hurt every day. except for some breakthrough in science I am most likely going to die with this Cerebral Palsy I was born with. thinking about all this is and can be exhausting. There is a very difficult but simple way to handle this paradox.
“We who are strong ought to bear with the failings of the weak and not to please ourselves. Each of us should please our neighbors for their good, to build them up.” Romans 15:1-2 NIV
All you have to do is not deny it at all but refuse to dwell in it. Instead, you look at all the light that is around you and all that you can do for yourself. it could be as easy as reading these words or having them read to you. giving up is easy finding great ways to continue that’s the challenge. That begins every day, isn’t that worth living for? I love you all, have a great day friends.

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