Subscribe to continue reading
Become a paid subscriber to get access to the rest of this post and other exclusive content.

As an individual living with Cerebral Palsy (CP), I take pride in being nonpartisan. My disability does not care if I support the elephants or the donkeys in November. Most likely, I will not walk in January regardless of who is sitting in the Oval Office. I may have been born disabled but everyone else is temporarily abled. Your body will fail, and you will need help from someone else to help you live your life. I can see both sides of most hot-button issues if you want to balance the economy ask someone who has a balanced budget on a fixed income for the majority of their life.

I would never impede anyone’s opinions or beliefs, Please be a patriot and go vote in November. Many suggest that eliminating the Department of Education would help balance the budget and bring money back to the states. This is not an efficient way to cut down on wasteful spending. This would be wrong and dangerous for individuals and families with disabilities.
Most Americans have never heard of the Individuals with disabilities education Act (IDEA). The legislation was revised in 1990 under a republican administration. Here is a quick overview of the law. According to Access for Special KidsResource Center (ASK)

I am not ashamed to admit that I had an IEP meeting every year since I can remember. It ensured I had the proper support I needed to thrive as a student. I had a paraprofessional accompany me to every class who took my notes, helped me review materials after class, and helped me with my personal takes. I attended mainstream classes. I was not locked away in the special ed classroom. Every year some of the teachers f thought that’s where I belonged because I was a wheelchair user. I loved proving them wrong. The other students had to see me as a person not just a disability. I was a student just like them with goals, dreams, and embarrassing moments to overcome.
Psalms 41:1 NIV [1] Blessed are those who have regard for the weak; the Lord delivers them in times of trouble.
Disability should not be a burden on society, it should be an asset to their communities. Students without disabilities should not be afraid to approach those who are different. All children should be able to learn and help each other. That is how we build a prosperous future for America The reporter Geraldo Rivera exposed the horrors of Institutional living in the mid-80s. All these years later our population is still being Isolated. What makes one student less than another? Disabled students are placed in out-of-district schools that “specialize in disabilities.” They need to be allowed to see if they can adapt and grow with non-disabled peers before being segregated. The easiest solution is not always the best solution. There should not be a disabled population, versus a non-disabled population, but Americans. We need to move forward not backward.


Become a paid subscriber to get access to the rest of this post and other exclusive content.

I’ve spent the last week and a half watching the Paralympics, have you? I am a proud American and love this country with all my heart. I would have enlisted to defend this nation long ago. Since I turned 18 I made sure to vote in every election, including the primaries. Most people don’t even know who sits on their School boards but I do. I always do my due diligence to research the candidates. That’s what you’re supposed to do. I am part of the American population that has been ignored, and I finally have a way to prove it. There is a sad truth in America. Unless disability affects your life in some way people don’t care about you. A few weeks ago there was non-stop coverage of the 2024 Paris Olympics. Everyone knew that LeBron James carried the flag at the opening ceremonies. Does anyone know who carried the flag for the USA in the Paralympic games?
Steve Serio has participated in several Paralympic games; he is the captain of the US wheelchair basketball team. All the sports channels went crazy when the US rugby team won a medal. Does anyone know what the Paralympic rugby team won? For years Michael Phelps and Simone Biles were on in primetime. The Paralympics have never been in primetime. Is it because the girls who play seated volleyball don’t wear revealing outfits like the ones in beach volleyball? I never saw any tick-tock with Snoop Dogg next to a paralympic athlete. For 17 days there were recaps every night of all the events if you didn’t have the peacock app they don’t televise 99% of the events. Channels in other languagesPromoted the Olympics for months, not this time

Does anybody care? We have all moved on to our fantasy football leagues and pumpkin spice lattes. America likes to preach equality and equity, but when it comes to the disabled we are hypocrites. I feel it is because America has this misguided belief that individuals with disabilities no matter what the diagnosis only serve to inspire and encourage the rest of the population. We cannot be seen as equals because otherwise the rest of America would have to see their mistakes and see their weaknesses. Americans like to pretend we are invincible. Besides liking a real on Instagram that lasts 3 minutes long we cannot be bothered to be moved outside of our comfort zone.
Leviticus 19:18 NIV “ ‘Do not seek revenge or bear a grudge against anyone among your people, but love your neighbor as yourself. I am the Lord.
Paralympic athletes are athletes. Instead of asking Alexa some dumb question ask it to give you a list of all the paralympic records that have been shattered over the last week and a half! Instead of complaining that there’s nothing on Netflix to watch. I dare you to look at a game of Goalball, paralympic bench pressing, or Blindsoccer. Everyone has their struggles but the disability population was not created just to make you feel good about your tribulations. We are your friends, we are your neighbors, and we should be treated as such we should be respected like every American!

i am hosting the Region 7 for SABE Click Here to register before September 6, 2024.

As a child with a disability, I attended mainstream classes all my life. One memorable class was DARE (Drug Awareness Resistance Education), aimed at preventing drug addiction—a fear shared by all parents. This program made me realize the importance of early education on critical issues. Just as children learn about the dangers of drugs, they should also be taught about disability etiquette and inclusion from a young age.
Children’s natural curiosity about differences should be nurtured, not stifled. When a child asks about someone with a disability, parents often shush them out of discomfort. This only perpetuates ignorance. Instead, open discussions can foster understanding and empathy. I recall a time at a mall with my brother Abner and our caregivers. We exited an elevator and overheard a father tell his son, “Thank God you’re not like them.” This comment stung, but more than that, it made me pity the man for his ignorance—a product of likely never having been exposed to individuals with disabilities.
The disability community is the largest underrepresented and underserved group in the U.S., encompassing every body shape, skin color, sexual orientation, and gender. Despite this, society often ignores us to avoid disrupting their busy lives. Disability is not going away; it’s a natural part of the human experience. Everyone is only “temporarily able” and might need help eventually.
Living with a disability means no days off; it’s a constant presence. Every day, I face frustrations and struggles. In school, I wasn’t just the last picked for dodgeball—I was excluded entirely because it was deemed “too dangerous.” In home economics, while others learned to sew, I was switched to a different elective because the teacher assumed I couldn’t use the sewing machine pedal. I was never given a chance to adapt or prove my abilities.
Ableism limits growth for societal convenience, imposing barriers that exclude rather than include. Consider the story of Judy Heumann and the 504 sit-in—a pivotal moment in American history that highlights the fight for disability rights. Stories like hers should be part of our collective knowledge, teaching us about resilience and the importance of inclusivity.
Exposure to disability issues from a young age can normalize differences and reduce stigma. Integrating disability awareness into education can help children grow into empathetic, informed adults. The more we see and understand people with disabilities, the less “other” they become.
Our society must recognize that disability is part of the human condition and that inclusivity benefits everyone. By breaking down barriers and challenging ableist attitudes, we create a world where everyone has the opportunity to thrive. We must move beyond fear and ignorance to embrace a future where all individuals are valued for their unique contributions.


For the majority of my 20s, I wasn’t partying or drinking on the weekends. I was attending a series of habilitation day programs. I know most people don’t know what that is; don’t worry, I didn’t know what it was either until I got there. The easiest way to describe it is as an adult daycare for individuals with disabilities. This blog is not about me, but the impact “Baby Doll” had on me and those around her.
Every so often, we come across someone whose life story is so hard to believe that part of it becomes a legend. Baby Doll was a strong African American woman. She was petite, but her heart was three times bigger than she was. Unlike most people, she was not afraid of letting the world see her heart. If she knew you, she would love you! She did not care what your skin color was. Gay or straight, that had no consequence. Every day, she hugged anyone. Oh, how I miss those hugs.
This story needs to be shared because there’s a large sector of the disability community that has been neglected and has become less human. This makes me feel so angry. I chose the alias “Baby Doll” because that is what she called all of us who attended the day program. We knew who she was talking to just by the way she said the words “Baby Doll.”
Those of us who can help others must fulfill that responsibility. Baby Doll was born completely “normal,” a pure product of her environment. Her own family forced her into prostitution and drug use. This did not take place in Russia or some third-world country—right here, in the land of hot dogs and the New York Yankees!
She was eventually burned alive by the waste. After her brain was fried and her body was all used up, she was given over to the state of being an adult. When you’re given a court-appointed guardian, you can’t even get a library card in your name.When I met her, she was a shell of her physical self. Her wonderful smile had no teeth. She seldom wore short sleeves, even in the summer. Baby Doll had gray, thinning hair. She used a small collection of wigs. The nicest one she had, she wore to her funeral.
The Lord your God is with you, the Mighty Warrior who saves. He will take great delight in you; in his love he will no longer rebuke you, but will rejoice over you with singing.” Zephaniah 3:17
Yet there are a few aspects of disability life of which people should be aware. Do you know what people with disabilities have in common with prisons and communal settings? The government pays for all essential parts of life. The participants are paid less than the minimum wage. Most importantly, the individuals are denied some critical freedoms. Let me be clear. We do need more medical and behavioral facilities for those with severe needs. We are past the crisis point where we need quality caregivers who deserve a decent wage. The system is so focused on protecting itself. It denies flexibility to the human element.


For the first episode of March, Kevin is proud to present this laid-back episode where he simply updates you on the fun times he had in the last few months. This is a different kind of podcast from your favorite little podcaster.
SHOW NOTES
New Jersey Council on Developmental Disabilities

Whether we like it or not, 2024 is a presidential election year. Now that we are most likely faced with a rematch, Americans will have to make a choice. It’s fair to say that President Biden has had his share of critics. His first term is not even over, but I don’t think many historians are going to put him in their top five of the best US presidents. I know I’m a few months early, but as a disability advocate, I have a different perspective. There are issues that matter to me that most people don’t think about. Most people don’t recognize disabilities until they’re affected by them. We finally have a president who has seen this underrepresented community.
“provide for the common defence, promote the general Welfare, and secure the Blessings of liberty.”
free and both of the US Constitution
Biden became the first president to improve the lives of people and families with disabilities when he vowed to support Home and Community Based Services (HCBS), which includes long-term services and supports. (LTSS) People with disabilities should live in their communities in the least restrictive environment. For some people with disabilities, they are locked away and forgotten. We must serve and protect those who are most vulnerable. Some may want us dead. We all have the same right to live.
Exodus 14:14 NIV [14] The Lord will fight for you; you need only to be still.”
I am a capitalist. It is maddening to me that just because I was born with a disability, I am forced into a system of poverty. There is nothing wrong with being broke. What is wrong is that I, as an American, don’t have a chance to change that. The social security asset limit set in the mid-1980s has not changed. Under this administration, there has been serious discussion about raising it. I cannot have more than $2,000 in a bank account, so someone else can pay for my $50,000 wheelchair. How does that make sense? I want to live my American Dream, not exist off of the backs of others. There is nothing like going home knowing you earned that money.
Emily Voorde probably won’t be studied in history books like Kamala Harris. Voorde was the associate director of public engagement for just under 500 days. For the first time in my life, I saw someone who looked like me in a real position of power. She was not there just to be a token, but to actually make change.
Most Americans don’t realize that we still don’t have marriage equality in this country. There is still a marriage penalty for those with disabilities. This president may stumble with his words from time to time, but I’m confident he would support eliminating this obscene restriction so people can love regardless of their abilities.
I certainly don’t agree with all of the Biden administration’s policies. He still has more proof. The work is still not done. However, he is the first president to give me, as a disabled American, hope for my American Dream.

Check out the latest on the bonus content for just $5 a month

Greetings readers, Now that summer is over and everyone is back from their vacations, I thought it’d be a good time to advocate for some systemic change. Traveling with a disability is an absolute nightmare. Despite what Hollywood movies might have you think, the bathroom on the plane is not large enough to fit two people or even one person using a wheelchair. After I use the restroom at the airport, I am the first person to board the plane. I am removed from my wheelchair and placed on the aisle seat. This is a device resembling Hannibal Lecter’s transportation flight. You can see a full description of this device in the YouTube video. Then I am placed in a regular airplane seat.
“lest you lose your honor to others and your dignity to one who is cruel,” Proverbs 5:9 NIV
I do not move for the duration of the flight. Finally, I am the very last person to get off the plane. I can guarantee you that it is not comfortable at all. By the time everyone gathers their belongings and gets off the plane, another thirty-five to forty-five minutes have gone by. I do not go on long-distance flights What if I have to use the bathroom? I’d have to expose myself in front of the entire airplane. What would I do if I were a female?
A person with a disability may find it difficult to navigate an airport and board an airplane, especially if they use a wheelchair. Transfers are often difficult because traditional airplane seats are not always accommodating. These passengers’ difficulties are further exacerbated by the cramped quarters and difficult-to-access restrooms onboard.
Delta’s Air4All prototype takes a giant leap toward enhancing airplane accessibility. With the idea of removable seats, spaces for wheelchair users would take the place of traditional rows. Allowing individuals to remain in their wheelchairs not only ensures their comfort but also promotes their Self-determination. This innovation celebrates the independence of passengers with disabilities. This ground-breaking design lets wheelchair users remain in their own chairs, maintaining their comfort and dignity. Boarding and deplaning would be streamlined and much more user-friendly for the individual. This is still in the early phases, so advocates need to speak up now!
Delta’s Air4All is a beacon of hope for accessible air travel. By introducing removable airplane seats to accommodate wheelchairs, Delta is transforming the flying experience for individuals with disabilities and encouraging other airlines to follow suit. As we soar toward a more inclusive future, let’s unite to ensure that everyone, regardless of their physical abilities, can experience the joy of taking flight.Thank you for reading, and I hope to see you guys next week. You can find the sources below.
Sources:
https://www.travelandleisure.com/delta-wheelchair-prototype-air4all-7509744

I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters