Tag: disability rights

  • Patience Is A Virtue: Nick Takeover

    Patience Is A Virtue: Nick Takeover

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    How One Finds Balance Between Dependency On Others VS Self Advocacy

    By, Nicholas Taubenslag

    As children, we depend on parents to guide, teach, and for emotional support. They guide and teach us what’s wrong and what’s right. Whenever we have a negative experience that hurts our self-esteem we lean on them to help build it back up. For example, In the school years of my life I was emotionally tormented by bullies whom I thought were “friends”, however, I came to find out for myself they weren’t thinking in my best interest. My parents taught me that it’s important to forgive those people internally. Forgiveness is not condoning the other person’s behavior and/or actions by any means. It’s about finding a small measure of peace within oneself. Jesus Christ illustrates this point perfectly when he stated on the cross

     Jesus said, “Father, forgive them, for they do not know what they are doing.” And they divided up his clothes by casting lots."
    Luke 23:34 NIV

    There comes a time in every person’s life when he or she needs to gradually learn how to ask for themselves what they want or need from others. For instance, my first taste of asking for what I wanted was when I was about four years old. My mom and I were at a bagel store. I wanted to get myself a “mini bagel”. I then asked my mom to get me one once we got to the front of the line. She said, “ If you can find a way to get to the front of the line in a polite, respectful, and courteous manner you can ask for it yourself.” So, I said please excuse me to every customer in front of me and when I finally got to the front of the line. I politely asked the employee If I could please have a mini bagel. As you can imagine I was overjoyed with having my prize. I didn’t realize at the time that later in my life I’d realize that Self Advocacy was part of my life purpose.

    As a Boy Scout earlier on in my life. I always had to treat everyone with kindness, love, and respect. When I needed assistance in order to complete merit I learned to partner with others to complete the badge. We were taught in scouts to do a good deed daily for someone else. In turn, the other person is willing to help you out. 

    One lesson I have learned in my life is not to act impulsively without thinking or consulting someone prior. The key thing is to have patience and release control over the desired outcome once we do that things flow a lot more easily.

    You’re probably asking yourselves how do I find the balance between depending on others and going ahead without their help or advocating for yourself. From my own experience, it takes patience, resilience, and never giving up. When asking for what you want it’s important to ask in a calm, polite, and respectful manner. There is a famous statement that illustrates this point perfectly. “You get more with honey than you do with a sting.” Everything takes time to get things done. 

    To sum this all up, With patience, a calm demeanor and resilience one can achieve anything their heart desires. May we all one day be able to ask for what we want confidently.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • America’s Cancer

    America’s Cancer

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    I want to start this post with this thought, some of you may not agree with me at all, but I think it speaks to the greater point. Everyone praises the freedom of speech granted to us by the first amendment of the US Constitution.  I use it every time I  click publish on one of these blog posts. I know there are people out there who don’t like what I have to say, and that is perfectly fine with me. These freedoms are guaranteed for all American people, not just the ones that agree with you. For the record, I did not vote for former President Donald Trump, but I believe it was wrong to have his Twitter account removed. We both have the same freedoms.

    Pray that I may proclaim it clearly, as I should. Be wise in the way you act toward outsiders; make the most of every opportunity. Let your conversation be always full of grace, seasoned with salt, so that you may know how to answer everyone.
    Colossians 4:4‭-‬6 NIV

    Everything is being canceled! from Dr. Seuss to Mr. Potatohead. Everything is offensive to someone else.  Do we need to learn to communicate telepathically? This way we can get rid of all social media platforms and no one would get offended. There’s something I don’t understand, if we live in a Democratic Republic government where everyone gets a vote, then why are individuals being censored for their thoughts and ideas as if we lived in a socialist government? So many people have been put in Facebook Jail” because some algorithms do not agree with the post. Their freedom of speech was suspended without due process. That doesn’t sound very American to me. Cancel Culture is not a movement it is a cancer-killing the American dream.

    I think we’re living in the early days of the actual life of Hunger Games. For those of you who live under a rock. The Hunger Games is a series of novels and movies where a young lady leads the rebellion against a totalitarian government in a dystopian future. In the movie’s surprise ending the protagonist kills The president of the new rebellion after learning she was planning to enact some of the same policies as the old regime, ensuring that everything would truly start fresh. I’m not saying that we should all go practice our archery skills in case we get called to represent our districts, but things are occurring that I feel we should be worried about. I do not mean this to be a political blog and I am bipartisan all the way. I love this country with all my heart. Someone like me could thrive nowhere else. Everyone picks on Jeff Bezos because he’s a multi-billionaire, but thanks to Amazon I was able to publish my first book and have it shipped all around the world. Yes, they take a percentage of my profits but how long would it take someone with my disability to print just one book? It is not a question of convenience it is a matter of accessibility.

    America does not have the best past, but if we erase it all then how are future generations supposed to learn from it. Education is how we stop Ignorance, bigotry, and hate. If you spill a glass of milk, throwing out the milk carton does not get rid of the smell that was left by it. Only cleaning it up can do that.

    Why would you waste the milk that was still left in the carton? Just like black history needs to be taught in school, so should disability history. Children should know why the N-word is wrong. They should also learn why the R-word is wrong. Disability doesn’t care what color you are on the outside. It can be the ultimate equalizer.

     So don’t take down statues of Confederate soldiers, take the children to see them and tell them what was wrong. Then take them to the Institutions and let them hear the stories of those who were abused and still are being abused. We all need to learn real tolerance and appreciation for someone’s struggles, not just appeasement. It’s okay to disagree, it doesn’t make the other person “the bad guy.” We all deserve dignity and respect. Ask any singer or actor. There will always be hate and ignorance in this world that does not mean we have to lose respect for others On a purely human level. May God bless you and enjoy the rest of your week.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • Ensure Privacy for People with Disabilities

    Ensure Privacy for People with Disabilities

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    The following was written as an Op-Ed advocate for pending legislation in New Jersey in February 2022. Hope you enjoy and have a good day

     My name is Kevin G. Nuñez I am a thirty-four-year-old Puerto Rican male living with Cerebral Palsy. Ensuring and protecting the rights of people with disabilities is what  I have been doing my entire life.  I immigrated with my family to New Jersey at the age of four. Due to the nature of my disability, I use a wheelchair as my primary tool to live my life.  I have my daily struggles to overcome and try to live my life the best way I can. I need to use this platform to bring attention to an issue that does not enter the public consciousness when it comes to the disability population.

    Like most individuals with disabilities, I use the assistance of a Direct Support Professional (DSP) with my personal needs daily.  When I want to visit my family, I must take a three-hour and twenty-five-minute flight. Despite what Hollywood movies might have you think, the bathroom on the plane is not large enough to fit two people, or even one person using a wheelchair.  After I use the restroom at the airport, I am the first person to board the plane. I do not move for the duration of the flight.  Finally, I am the very last person to get off the plane. I can guarantee you it is not comfortable at all. By the time everyone gathers their belongings and gets off the plane another thirty-five to forty-five minutes has gone by.

     At this point, Mother Nature has my full attention. When I get to the next accessible bathroom, there is always someone in the handicap stall; peacefully stretching their legs in a space they don’t need to be using because they don’t have a disability. This leaves me with two options.  The first is to wait until they’re done and at best get a halfhearted apology. My second choice, I am forced to relieve myself in the corner of the restroom by exposing myself and urinating into a  plastic urinal bottle. Females with disabilities do not have the same luxury.

    Thanks to Assemblywoman Carol Murphy a Bill was introduced that requires business owners to put up signs on these specific bathroom stalls to discourage people from using them inappropriately. Provided there is more than one stall.  The Accessible Restrooms Sign Bill (A467/S1239) Needs to be made a priority, This is a human rights issue! It has gained bipartisan support. We are still awaiting committee review in the New Jersey state legislature. This legislation secures dignity and respect in this private moment that all humans should have.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • Subconscious Genocide

    Subconscious Genocide

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    Hello once again, I hope your Wednesday is going well. The reason I wanted to wait till March to relaunch my blog is that March is known as disability awareness month in the United States. It’s usually seen as a celebration of how far our community has come in the last few years. I want to use this opportunity and this platform to bring attention to those of us that have been forgotten. Not everyone can post on Instagram or come up with a fancy new hashtag. Those of us who can speak must stand for those who have no voice.

    A few weeks back in a nursing home In Sussex County New Jersey Just under 200 individuals with various disabilities were found locked away in horrible conditions. According to reports linked below, countless rooms smell like urine and feces. By the time most of you are reading this the world is probably moved on to the next story and lawsuits have already been filed what about the people themselves? What are their stories? Has their suffering ended or did they just get transferred from the facility where they’re still going to be abused? I know the system is overwhelmed and understaffed but that said the reason why this happened. Instead of Googling the latest TikTok craze, I asked that you take a few minutes to investigate this. This is not an isolated incident. I think what hurts the most, is that this situation keeps recurring. The coronavirus pulled back the curtain on this horror show.

    Generalizing something like this happens, when an individual with an intellectual disability suffers a stroke. They do not recover fully and because the system does not have enough medical group homes They are forced into these programs that cannot meet their needs accordingly. Having a disability is not equal to aging.  I once knew a man who went through this exact scenario at 55. participants from his day program were the only visitors. I am saddened to say he’s no longer with us. I believe he didn’t make it to his 60th birthday. This took place years before there was a global pandemic. Who you think anyone went to his funeral?

    “Blessed are the merciful, for they will be shown mercy. Blessed are the pure in heart, for they will see God.” Matthew 5:7‭-‬8 NIV

    There are plenty of systemic issues because the system is not centered on the person It’s focused on protecting itself from lawsuits and avoiding blame at all costs. The human service industry In its entirety at a given point took on its own life force. It has become a runaway train coasting down the track. What can we do to stop it? I don’t have the answer to that but I can tell you we need to focus on the little things. There’s no reason why the staff cannot take the clients out on a walk. I’m not exaggerating, read the articles for yourself. 

    The reason why this subject hits so close to home is, I know If it wasn’t for my family This could have been me. Imagine going to bed but never being able to get out of it. We don’t see value in people with disabilities. I tried to think of a creative comparison, It’s not like prison because they have committed no crime. It is different from slavery because no one is benefiting from their silent pain. We have created a subconscious genocide by ignoring those who need us the most. Wake of America!

    Source Material:

    https://www.nj.com/news/2022/02/nearly-200-people-are-locked-down-living-in-inhumane-conditions-at-nj-nursing-home-advocate-says.html

    https://www.nj.com/news/2022/02/residents-lives-at-extreme-risk-feds-say-as-they-threaten-to-essentially-shut-down-troubled-nj-nursing-home.html

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

    ← Back

    Thank you for your response. ✨

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