Tag: Disability Awareness

  • Breakdown of Me Before You

    Breakdown of Me Before You

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    Is there a book you’ve read more than once? Don’t worry, this is not another shameless plug for my book. I’m going to talk about another book. Admittedly, I’m more of a movie buff than a bookworm. I can count the books I’ve read more than once on one hand. For me to do that, the book must stand out. I want to start a new series on my blog where I break down books and other sources of media featuring The disability community. I know this is not a new idea, but I never claimed to be original. For this first installment, I will be discussing the film and book Me Before You by Jojo Moyes I both love and hate this piece of fiction.

    Please note that this book and film are over 10 years old, and I will be discussing spoilers. So, if you don’t want the ending ruined for you, come back and read this later Emma Clark, the female protagonist, is one of my celebrity crushes. The only reason I watched the movie in the first place was because I read the book after watching the movie. I am writing this before I purchase the audiobook. I am recommending this book and film. However, there are a few things you should know first.

    Therefore we are always confident and know that as long as we are at home in the body we are away from the Lord. For we live by faith, not by sight. 2 Corinthians 5:6‭-‬7 NIV

    Quick synopsis Will Traynor was once a very athletic and active young man before becoming paralyzed. His mother hires Louisa Clark to accompany him and perform some caregiving tasks, but not any of his private ones. Another caregiver looks after those. It is clear from the outset that the disabled character is depressed and missing his former life. As often happens in the beginning, they are both annoyed with each other before falling in love. After overcoming hardships and learning to trust each other with their most intimate life details, like a sexual assault that occurred to the female character, It is revealed that Will had planned and assisted suicide a year prior. Unfortunately, it does not end happily, as he follows through with those intentions.

    Before I begin, I want to say I am not a paraplegic or quadrilateral. I was born with a disability. Every person is different, and every person living with a disability is different. It is not for me to say If the character is an accurate representation of a quadriplegic. I usually don’t enjoy first-person narrators. This is overused in young adult literature. Keeping this story from the point of view of Louisa not only keeps this story interesting, but it also serves as an educational piece to teach outsiders about disability. It’s okay to show that disabilities can be intimidating. Having a disability can be overwhelming at times The disability community does not serve to inspire the rest of society. No one with a disability is positive all the time. Struggles with mental health are real. People with all kinds of disabilities can have successful romantic relationships, even quadriplegics.

    The idea that individuals with disabilities often harbor thoughts of suicide explains Will Traynor’s desire to end his life. This portrayal oversimplifies the complex emotions experienced by people with disabilities Just because someone has a major disability does not mean they wish to end their life. I truly believe that pieces of media like this unintentionally feed the idea That we should be put out of our misery. We are not dear on the side of the road. We are human beings with the same rights to live as anyone else.

    Another stereotype the book addresses is the belief that love cannot flourish in a relationship involving a disabled person. Louisa and Will’s connection is depicted as profound and heartfelt. However, the story inadvertently hints that love can only exist in the face of pity and tragedy when one has a disability. This portrayal undermines the possibility of genuine love in such relationships.

    Literature like this can inadvertently propagate negative stereotypes. When books consistently depict individuals with disabilities as trapped in despair, they reinforce biases and restrict opportunities and expectations. As responsible readers, we should approach such stories with a critical perspective and use them as a starting point for conversations that challenge these stereotypes. By doing so, we can contribute to a more inclusive society where individuals with disabilities are recognized for their unique strengths and abilities rather than being confined to harmful clichés.

    Sources:

    https://www.jojomoyes.com/books/me-before-you/

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • Hope for Disabled Travelers

    Hope for Disabled Travelers

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    Greetings readers, Now that summer is over and everyone is back from their vacations, I thought it’d be a good time to advocate for some systemic change. Traveling with a disability is an absolute nightmare. Despite what Hollywood movies might have you think, the bathroom on the plane is not large enough to fit two people or even one person using a wheelchair. After I use the restroom at the airport, I am the first person to board the plane. I am removed from my wheelchair and placed on the aisle seat. This is a device resembling Hannibal Lecter’s transportation flight. You can see a full description of this device in the YouTube video. Then I am placed in a regular airplane seat.

    “lest you lose your honor to others and your dignity to one who is cruel,” Proverbs 5:9 NIV

    I do not move for the duration of the flight. Finally, I am the very last person to get off the plane. I can guarantee you that it is not comfortable at all. By the time everyone gathers their belongings and gets off the plane, another thirty-five to forty-five minutes have gone by. I do not go on long-distance flights What if I have to use the bathroom? I’d have to expose myself in front of the entire airplane. What would I do if I were a female?

    A person with a disability may find it difficult to navigate an airport and board an airplane, especially if they use a wheelchair. Transfers are often difficult because traditional airplane seats are not always accommodating. These passengers’ difficulties are further exacerbated by the cramped quarters and difficult-to-access restrooms onboard.

    Delta’s Air4All prototype takes a giant leap toward enhancing airplane accessibility. With the idea of removable seats, spaces for wheelchair users would take the place of traditional rows. Allowing individuals to remain in their wheelchairs not only ensures their comfort but also promotes their Self-determination. This innovation celebrates the independence of passengers with disabilities. This ground-breaking design lets wheelchair users remain in their own chairs, maintaining their comfort and dignity. Boarding and deplaning would be streamlined and much more user-friendly for the individual. This is still in the early phases, so advocates need to speak up now!

    Delta’s Air4All is a beacon of hope for accessible air travel. By introducing removable airplane seats to accommodate wheelchairs, Delta is transforming the flying experience for individuals with disabilities and encouraging other airlines to follow suit. As we soar toward a more inclusive future, let’s unite to ensure that everyone, regardless of their physical abilities, can experience the joy of taking flight.Thank you for reading, and I hope to see you guys next week. You can find the sources below.

    Sources:

    https://www.travelandleisure.com/delta-wheelchair-prototype-air4all-7509744

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • Out of the Comfort Zone

    Out of the Comfort Zone

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    Hey everyone, Now that Labor Day has passed It’s time to get back to blogging. As some of you know, I took the last two months off. To recuperate from surgery and finish my next book. This is my attempt at a life update. First, my hernia surgery was a complete success with no complications. Second, I didn’t finish writing my book, but I think it’s about 75% complete. Stay tuned for further updates. Life is full of opportunities for growth and transformation. Sometimes, all it takes is a willingness to step out of your comfort zone and make small changes.

    “As the body without the spirit is dead, so faith without deeds is dead.” James 2:26 NIV

    The first change I made was admitting I needed help I know I’m a small-time content creator. That’s perfectly fine with me. I want to do some good and deliver a positive message. There are so many distractions and responsibilities that seek our attention that I am truly amazed when someone takes a few minutes out of their day to read my blogs, listen to one of my podcasts, or buy my books. As you can imagine, this takes a lot of time and energy. This is my part-time job, essentially. My other part-time job is my official advocacy duties, where I serve on various committees on both the state and national level. Despite what you may believe, I do not get paid for any of it. This is a labor of love. Honestly, It can be a little overwhelming for me There is one blog per week and two podcasts a month at a minimum.

    I promised myself when I started this journey a few years ago that I would never do it for the money. I hate asking for money. So, after much deliberation and prayer, I decided to employ “the value method.” If you, as a consumer, find value in my work, then please leave me a tip. Now at the top of each blog and podcast You can find a link to my CashApp and PayPal. You can also support the podcast directly. Think of it as a musician on the street If you like my tune, leave some change in the hat. No one is under any obligation, and the content will always be available.

    If you follow my social media accounts, I post on them five out of seven days a week. quick little videos of positive reinforcement. Some days, this was more exhausting than producing a podcast. This was the only way I knew To promote my work. So I decided to get off the social media hamster wheel. From August 1st to September 1st, I deleted my social media account. Facebook,Twitter,Instagram, and Snapchat To be transparent, I did keep my LinkedIn, but I hardly ever used it before, and I didn’t really use it in that month anyway.

    I have it for my advocacy connections. For the first three or four days, Every time I Went to grab my phone, I felt a little bit weird. We, as a society, have become addicted to social media. After that, I really didn’t think of it at all. I finished a few audiobooks. I wrote three times as much in my book. That was my main goal. It was easier to be more present. I had conversations with people both in person and via text. Without Facebook, you have to find out what the person has been doing. Social media is an important part of our lives. Sometimes you do want to see pictures of your friend’s birthday party or someone’s major life event. However, 90% of it is miscellaneous and forgettable information anyway. The only reason I went back to those accounts was because I hoped one of my videos would make a difference in someone’s day.

    The last change I made was more of a personal one. I’m always complaining that I’ll never find someone special in my life. So, I decided to take a chance and do something I promised myself I would never do. Get on dating apps. It’s been about 2 weeks, and I haven’t had any real connections or conversations with anyone, but I figured. Faith without action is dead, so I have to keep putting myself out there. I took the first step and let God do the rest.

    Whether it’s taking a break from old habits, trying something new, or seizing new opportunities, each step can lead to personal growth, self-discovery, and positive outcomes. So, don’t be afraid to step out of your comfort zone and embrace change—it might just be the key to a more fulfilling and enriched life. I hope this wasn’t too boring of a first entry after a long summer off, but I wanted to keep you guys informed. Thanks for reading, and I will see you guys next Wednesday. Remember, podcast episodes come out on the first and 15th of every month.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • intentional life changes

    intentional life changes

    PBW Sep 2o23 PT 1

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    People often complain about being stuck in a rut. In this episode, Kevin breaks down three ways to change your life. Remember, small things always add up to the biggest.
    1. Try something new that scares you
    2. Seek different opportunities.
    3. Stop one habit.

    Apologies for the DIY lighting and sound editing. I will no longer record in the middle of my kitchen.

    Like and subscribe for more content

    Order Confessions from Disability Limbo here:
    https://www.amazon.com/Confessions-Disability-Limbo-Commentary-Society-ebook/dp/B09B81DLZS?ref_=ast_author_mpb

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  • the Mystery of Disability Pride

    the Mystery of Disability Pride

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    In the first episode of August’s Purposely Broken World, Kevin brings up disability pride and what it means to him. Faith plays a significant role in Kevin’s disability Identity. Kevin recounts personal stories of discrimination.

    Disability history is American history. Judy Humann, Brad Lomax, and the 504 sit-ins should be taught in schools. Financial discrimination and disability discrimination are still prevalent in today’s America. Feel free to join the conversation.

    Show Notes

    504 sit-in: https://en.wikipedia.org/wiki/504_Sit-in
    Crip Camp trailer: https://youtu.be/XRrIs22plz0
    Disability Pride:https://en.wikipedia.org/wiki/Disability_Pride_Month
    Bible Verses
    I consider that our present sufferings are not worth comparing with the glory that will be revealed in us.
    Romans 8:18 NIV
    https://romans.bible/romans-8-18

    “Neither this man nor his parents sinned,” said Jesus, “but this happened so that the works of God might be displayed in him.
    John 9:3 NIV
    https://john.bible/john-9-3

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    Order Confessions from Disability Limbo here:
    https://www.amazon.com/Confessions-Disability-Limbo-Commentary-Society-ebook/dp/B09B81DLZS?ref_=ast_author_mpb

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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    Thank you for your response. ✨

  • The Dog Days Of Life

    The Dog Days Of Life

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    In the conclusion to The Dog Days of Life, Kevin breaks down the best ways to find the gift card left for you to make your life count. If you want to learn how not to sleepwalk through life, watch this video or listen to this podcast. Just because your situation is terrible doesn’t mean you must stop living.

    Order Confessions from Disability Limbo here:
    https://www.amazon.com/Confessions-Disability-Limbo-Commentary-Society-ebook/dp/B09B81DLZS?ref_=ast_author_mpb

    Support the podcast with a monthly sponsorship.
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  • The Dog Days of Life PT 1

    The Dog Days of Life PT 1

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    In the July episode of The Purposely Broken World, Kevin breaks down the worst day of his life to shine a light on depression and disability. Spiritual growth helped him find the light. Spiritual growth is just as important as mental and physical growth. In order to go forward, sometimes we have to reflect back. Subscribe to join the conversation.

    Support the podcast with a monthly donation.
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  • My SABE Second Chance

    My SABE Second Chance

    Have you missed an opportunity, and it became a nagging thought in the back of your mind that you couldn’t shake? Not necessarily regret, simply something you always wondered about. A “what if” moment. Second chances don’t come along that often. especially if you have a disability. Most of the time, we don’t get a first chance. Well, for the first time in my life, I’ve been blessed with this second opportunity. I’m scared to take it, but I know I’m ready for it.

    In case you didn’t read last week’s blog, here is a quick synopsis. In 2018, I attended the national SABE conference. Self Advocates Becoming Empowered is the leading independent advocacy organization run by and for people with disabilities. Every voting member on their board has to have a disability. The representatives divide the country into regions. New Jersey is in Region 7. Along with Pennsylvania, Delaware, Washington, DC, Maryland, Virginia, and West Virginia. At the last conference, I was given the opportunity to represent my region as an alternate. It was kind of last minute. I made a bunch of excuses and decided I wasn’t ready. The next conference was in 2020. That would have been plenty of time to make the right connections.

    Honestly, over the years, I moved on from SABE. I thought it was going to be one of those moments in life. It’s been 3 years, and I haven’t had a conference due to the global situation. I was recruited to serve the region on an income basis. Until the next national conference Why me? I don’t deserve to do anything. So many people have died in the last three years with disabilities. How can I be their voice? I’m a goofball by nature. How can people trust me?

    I’m a firm believer in God’s timing because it’s no coincidence that this opportunity opened back up after my big brother Jesus found me and picked me up. One of the things I have to do is put together a regional conference. A conference made up of every state that I will be representing to educate and collaborate on disability issues. Apart from all the duties of the national organization. I will not lie; I’m more than a little scared. Intimidation is an understatement.

    New Jersey is a small state, and the advocacy community is very small. The organization and the region have been on hiatus. I have to make all new connections and all new contacts. There hasn’t been a regional conference in over 10 years!

    "When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze." Isaiah 43:2 NIV 

    As I’ve said before, I never got to finish college. If, through the glory of God, I get to put together this conference, this will be my graduation. This is the hardest thing I have ever attempted. Zoom and Google Workspace will be tremendous resources. Something that was not discovered years ago. I need to give a huge thank you to the New Jersey Council on Developmental Disabilities for sponsoring me on this journey. By the time this is published, everything should be made official. Someone smarter than me once said, “Life begins outside your comfort zone.” This may not be professional for a blogger, but I’m asking that if you took the time to read this, please pray for me. Not for success. That’s all for God. I’m just looking for wisdom and strength. Never give up, because God won’t give up on you!

    Special Announcement

    I will be taking a small break for the rest of the summer to finish the first draft of my book. Confessions of a Wise Fool. The first draft is always the hardest and I want to get finished before I start working with SABE. I will be back with more blogs after Labor Day. I promise I will still be doing podcasts, so stay tuned to the website! Enjoy the summer.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

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  • Missing out on SABE

    Missing out on SABE

    2020 Reflection

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    Note: The following blog was written in 2020 based on my life experiences. There have been some major life events that have occurred regarding this portion of my advocacy journey. Before I share that, I must share this for context. I hope you enjoy it, and I will provide part two next week.

    The word independence always makes me laugh. Individuals with disabilities are always pushed to be more “independent.” No one is truly independent; we all need a little help. I need more than most; there’s no denying that. I have a very good support system to help me live my day-to-day life. They help me with such things as bathing, dressing, and bathroom necessities. For me, this is not a big deal. It is the only way I know life. If and when I do anything out of the ordinary, that’s when things get a little bit more complicated.

    As I mentioned previously, my life as a disability advocate was very unexpected. I’ve been presented with several different opportunities, and I do my best to capitalize on as many as I can. At this stage in my life, I want to make as much of an impact on the lives of others as possible. I want the work I do to last. I don’t want a fancy award or a statue. Just to see tangible evidence of what I have done. The proof will be seeing the smile on someone’s face. The majority of my work focuses on system change. I don’t work against the system; I work within it to come up with common-sense solutions.

    I was recently given the biggest opportunity of my disability advocacy career, but I don’t know if I can do it because of my disability. Trust me, I know how ironic that sounds. The position is as follows represent seven states on a national level to advocate on their behalf. The organization is called SABE.

    Self-Advocates Becoming Empowered is a national self-advocacy organization. Run by and for people with disabilities, completely independent of any political affiliation. In July 2018. I attended their national conference. I was asked to seek one of the representative positions. I would represent seven states as their lead advocate. I decided then that I would give myself two years to get myself ready and make all the right connections.

    I would only have to travel four times a year to attend the organization’s meetings. The rest I can do remotely thanks to modern technology like Skype and FaceTime. The tricky part is that I have to find one person who is willing to travel with me to help with my personal care four times a year for a 2-year term limit. Not many people would trust a stranger with personal tasks like this. I can’t help but feel guilty. I always feel like I’m bothering someone in some way. There is so much planning and preparation that takes place beforehand. Most get scared off. I do not have a lot of medical needs. Getting me ready for the day and getting me ready to go to sleep are the hardest parts. It’s those little things that people take for granted. That’s one of the main reasons I started this blog. I want to raise awareness about the real lives of people with disabilities.

    I’m not afraid of doing the work. Some people will be hard to deal with. I am sure about that. I still have to write up the proposal to acquire the funds I would need to attempt this venture. I know I must try. The purpose of life is to live life. I know there’s a good chance I will fail. Even if I get everything I need, there’s no guarantee I will win the election for the position. I don’t want to say, “What if?” I want to say, “I did.”

    “In their hearts humans plan their course, but the Lord establishes their steps.” Proverbs 16:9 NIV

    2020. I laughed while typing those numbers. The year the world changed, I spent two years calling people in different states. I would tweet their state organizations to introduce myself. To get ready for the next conference. I found people willing to do my personal care. Like everybody else, they postponed their conference, but not by one year but by two instead. 2022. In today’s world, that’s a lifetime! The disability community has always had a lot of turnover. In two years, every person I talk to will most certainly be gone.

    I never say never to anything, but it’s impossible to know where my life will be by then. Planning from 2018 to 2020 was easy because the world was in its established routine. Now there is no routine. One of the main reasons I wanted the position was to travel across the country four times a year. I’ve only ever gone to Puerto Rico and Disney World. It would have been cool to see new places.

    I am looking for a new opportunity to make a difference for both the world and myself. What opportunities have you not taken advantage of? What things have not worked out for you? I hope this gives you something to think about. Thank you for your time. Another blog will come next Wednesday, as usual. All comments are welcome.

    Disability Limbo Newsletter

    I started Letters from the Limbo as a way to connect with you on a deeper level. Twice a month, I send out an email filled with personal anecdotes, professional updates (like my recent reelection as Vice Chair of the NJCDD), and the policy insights I don’t share anywhere else. This isn’t just another email—it’s an unfiltered look at the life of a disability advocate. Join my community and get an exclusive, honest look at the work that matters

    ← Back

    Thank you for your response. ✨

  • First Dance Memories

    First Dance Memories

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    The Purposely Broken World, part of the Advocacy Life podcast network, is now offering two episodes a month, one on the first and one on the 15th. In this episode, Kevin recounts his first dance experience as a person with a disability. Please support this podcast.
    Support the podcast with a monthly donation.

    Website: https://advocatekevinnunez.wordpress.com/
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